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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Troy, NY

Do any of you wake up with horrible pain in your outer ears? No matter what pillow I use, or pillowcases I use, wake up frequently with my ear in agony, as though my ear was slept on folded somehow. Talked to 3friends of mine from this site, and two had or have had the same problem. Takes a painkiller to stop, and can take over an hour to stop hurting so much. Am wondering if this is common, or just a rare thing that happens? And if you do, what helps the pain? Thanks for reading this, and peace… read more

October 10, 2017
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Answer Summary

Members widely validated the experience of waking with severe outer ear pain that feels as though the ear was folded during sleep, with many... Read more

Members widely validated the experience of waking with severe outer ear pain that feels as though the ear was folded during sleep, with many describing it as an unexpected but common fibromyalgia symptom they once thought was unique to them. Several members shared practical strategies that have helped, including training themselves to sleep on their backs, using memory foam or neck pillows positioned below the ears, applying cortisone cream to sore outer ear areas, massaging the ear, using hot water bottles, and taking ibuprofen or Tylenol for relief. A recurring theme was the profound comfort in discovering they are not alone in experiencing this odd and painful symptom, with many also mentioning related issues like ear ringing, itching, burning sensations, and TMJ-related discomfort.

A MyFibroTeam Member

When I was a kid I use to get tinnitus treatments. They would use a tuning fork and place them at their different frequencies behind my ear the vibration would go into my inner ear and I found the treatment relieving. I have a genetic condition that mal forms the inner ear hammer ,the wishbone shaped bone and the Snail fibbionachi spiral shaped bone. It would help my tinnitus , migraine, and even jaw joint pain. Tmj.

October 23, 2017
A MyFibroTeam Member

I have it sometimes too. I usually have to sleep on my side, so I use a memory foam neck pillow and try to make sure it stays below my ears, then I don't have any pressure on them. This seems to help my shoulders some too.

October 11, 2017
A MyFibroTeam Member

It's so interesting hearing everyone talk about what I thought was a personal problem. I don't have pain inside of my ears but on my ear flaps (if that's what they're called). I have to sleep on my back all the time now, though I long to sleep on my left side. But just can't. I use a wedge and the softest pillow I can find, and I.have spent so much money trying everything out there.
When my ear does hurt I have found that putting a bit of cortisone cream gently on the area and using the tip of my finger to smooth it around really helps. I keep my nails extremely short now.

October 13, 2017
A MyFibroTeam Member

I got this for the first time last week. The pain went from my ear and was shooting up my head. I put a hot water bottle on it and that really helped x

December 8, 2017
A MyFibroTeam Member

I do same thing and ear just feels likes bent but it not.

November 1, 2017

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