Answer Summary

Members shared varied experiences with sensory axonal neuropathy, a condition many had never heard of before, with some noting its connection... Read more

Members shared varied experiences with sensory axonal neuropathy, a condition many had never heard of before, with some noting its connection to fibromyalgia and others offering potential causes like vitamin B12 deficiency, excess vitamin B6, poor nutrition, or alcoholism. Several members provided practical guidance, including seeking immediate treatment from a neurologist, taking vitamin B12 supplements while avoiding B6, and investigating related conditions like Guillain-Barré syndrome or Sjogren's Syndrome that can present with similar nerve damage. A recurring theme was surprise that primary care doctors were unfamiliar with the condition, paired with encouragement to advocate for specialist care and appreciation for the community's collective knowledge in filling gaps left by medical providers.