I have noticed most people on this site have at least moderate pain most of
the time. My pain seems to be much less severe. I feel very fortunate, but
wonder if others had severe pain from the start, or if it worsened over time?
I have had times in my life (I was diagnosed 20 yrs ago), that my fibromyalgia didn't seem so severe and my life felt somewhat normal. I'm 63 now and I've noticed that as I've aged, my FM has gotten somewhat worse. But what has made it the very worst, was moving away from my old comfortable life to move in with my mother to be her caretaker. This is near the coast and the weather here is more extreme and changeable which affects my having flares more often. Also, I'm under a much more degree of stress and that hasn't helped either. I'm having to learn how to adapt to a new situation.
Definitely was severe. I remember sitting, frozen, unable to move, waiting for my staff to arrive at my daycare. I am grateful it isn't like that anymore. Years of trying, repeating therapies, it's manageable....that's a good word.
I was recently diagnosed after first being screened for MS. That's when I found out I had Sjogren's syndrome. I chopped everything up to that. From my understanding, I possibly had fibro then with mild flare ups, now they are much more severe.
Fibro hit me like a ton of bricks it hurt me right away my pain seems like it gets worse all the time for me exercise makes it worse
Thank you, Bev Lee for your reply to my question. What a crazy disease this is, especially when most people seem to have one or more conditions on top of Fibromyalgia!
I can only imagine how nice it would feel for you to have relief!