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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Davenport, IA

My mom who has fibro and brittle bone disease says she's not in that much pain so I shouldn't be. My medicine I take doesn't even help and she doesn't believe me on that either. It makes feel like everyone thinks I'm lying but I'm not. Even my husband calls me lazy and thinks it's all in my head. It's just really frustrating. That's why I was wondering if fibromyalgia pain can be really severe.

July 26, 2017
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Answer Summary

Members responded with overwhelming validation that fibromyalgia pain can indeed be severe and varies greatly from person to person, with some... Read more

Members responded with overwhelming validation that fibromyalgia pain can indeed be severe and varies greatly from person to person, with some experiencing debilitating flares that make simple tasks like getting out of bed or using the bathroom excruciating while others manage with less severe symptoms. Several members shared that gabapentin has been their most helpful medication, though many emphasized the ongoing challenge of finding adequate pain relief and the difficulty of accessing pain medication in some areas. A recurring theme was the frustration of dealing with dismissive family members, doctors, and loved ones who don't understand the invisible nature of fibromyalgia, with strong encouragement to educate partners by bringing them to medical appointments and to seek supportive doctors who take the condition seriously.

A MyFibroTeam Member

Hello, yes I take a lot of medicen don,t help, here in WV you can,t hardly get any pain meds cause of the drug addicts. We had fibro meeting and that was the reason try to get your family and friends under stand what we deal with aces and pain.went to the doctor yesterday told her about this site how many on here.she said that some people wants people feel sorry for them, I like to give her some of my fibro for 20 years I had.yes some people say we are lazy or crazy, we know better hope this helps you my friend later..

July 26, 2017
A MyFibroTeam Member

Just my opinion… I think some doctors throw a diagnosis of fibromyalgia out there when they can't find anything else! I have a friend who was diagnosed several years ago with it..... she's out vacationing, working 12 hours a day, traveling to different countries and my list could go on! I had to quit my job because after a few hours I would sit in my driveway bawling from the pain! For all of my life I've been a go-getter, hard worker, runner, photographer and my list could go on! So don't let anyone make you feel lazy or crazy! The pain is really severe and no one can understand unless they've walked a mile in her shoes! My prayers are for you!

July 27, 2017
A MyFibroTeam Member

Please don't let anyone make you feel that way! They do not understand the daily physical, mental and emotional battle that we struggle through. I once had a Rheumatologist tell me that support groups were just people feeling sorry for themselves....well as Tony said...maybe they need a good dose of our pain to understand. I am hard enough on myself without anyone adding to the mix. . I have had fibro plus other auto immune conditions for many years and the pain can be very severe. Severe so much as to cause deep depression. You need to establish a good relationship with the right doctor and maybe your doctor needs to discuss this with your husband. You are not lazy! (((hugs))) Plenty of support here Sweetheart!

July 26, 2017
A MyFibroTeam Member

Fibro pain is very real and severe. For the first 15 years I had fibro I could manage relatively well however the last four years have been awful. I take a lot of pain meds on a daily basis to control the pain and chronic headaches. For the first ten years I took naproxen and it controlled my pain very well but my stomach no longer can take it. I found educating my husband and children and being more open about my illness helps. Because fibro is invisible people tend to forget or not realize in how much pain we are. You also need to find a family doctor that will be supportive of you on this journey. Once you have a supportive doctor I would recommend taking your husband to your medical apts.

July 27, 2017
A MyFibroTeam Member

Thanks everyone for answering my question. It's just been hard for me when everyone seems to be negative. Glad I found this. I need support and positive people.

@A MyFibroTeam Member I take 900mg of gabapentin and it seems to help a little but it still seems like I'm having a lot of pain than I should be. I also take nortripaline and a muscle relaxer. I'm just hoping I find some medication that gives me just a little more relief.

July 27, 2017

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