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Clinical trials for FM

A MyFibroTeam Member asked a question 💭
Sheffield, UK

Has anyone considered or been a part of any clinical trials for fibromyalgia?

July 24, 2017
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Answer Summary

Members expressed strong interest in participating in fibromyalgia clinical trials, with many willing to be "guinea pigs" if it meant finding... Read more

Members expressed strong interest in participating in fibromyalgia clinical trials, with many willing to be "guinea pigs" if it meant finding a cure for themselves and preventing their children from inheriting the condition. Several members shared frustrations with current medications like Lyrica and Gabapentin, describing side effects including severe swelling, weight gain, and allergic reactions, while one member reported signing up for UK medical testing companies and learned that a new drug trial may begin in two years. A recurring theme was the sense that fibromyalgia research lacks urgency because it is not considered life-threatening, though members discussed three theories behind the condition involving pain receptors, blood flow and nerve function, and genetic factors.

A MyFibroTeam Member

@A MyFibroTeam Member I've just signed up to 2 UK medical testing companies today. I see that one has already carried out tests for new drugs for FM. Report pending. I will keep you updated. x

July 24, 2017
A MyFibroTeam Member

I would love to be a guinea pig for a cure for fibromyalgia!

July 24, 2017
A MyFibroTeam Member

@ Wishdokter one is that our pain recpectors are out of wack from chemical inbalances in our brains . Sorry my brain isn't working . Lol. The other has to do with blood flow in our hands doing something with nerves . The third is it's in our DNA. From what I've read all three things play a part in it . These are beyond simplified answers . It was an article I read . But I've seen separate articles on all 3. I'm beyond fibro fog today . I'm on this pschyc med that is making me even more scattered brained. I get online news letters . Plus people send me things . Let me know about this drug trial. I'm pretty sure we aren't top of the list as far as research goes. We don't die from this . 😧

July 26, 2017
A MyFibroTeam Member

They do blood tests to rule out everything else . I dont think until they get closer to the cause of fibromyalgia can the find a cure. I've read about 3 major theories . 😏

July 26, 2017
A MyFibroTeam Member

Sometimes we have to be guinea pigs to find a cure. I would do it for my daughters. I have three. I see some sighs in two of them. Don't want to see them going through what I'm going through..please Lord, help them find a cure for our 👭

July 25, 2017

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