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A MyFibroTeam Member asked a question 💭
Melbourne, AU

Hey everyone, just a quick question for you all. I'm newly diagnosed fibro, and still trying to figure everything out, and if it's the right diagnosis. Everyone talks about the severe pain, can someone describe to me their pain? I've always thought that my pains were just normal pains that people feel in everyday life. Is it a specific type of pain, or all different types, because I get all different types. Any help would be great, thanks :-)

July 12, 2017
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Answer Summary

Members responded to someone newly diagnosed with fibromyalgia who questioned whether their pain was just normal everyday discomfort, with the... Read more

Members responded to someone newly diagnosed with fibromyalgia who questioned whether their pain was just normal everyday discomfort, with the resounding message that no pain is normal and fibromyalgia presents in wildly varied ways across different people and even hour to hour. Several members described their pain as aching, burning, sharp, stabbing, flu-like, or hypersensitive to touch, with common trouble spots including hips, shoulders, neck, feet, and joints, along with fatigue, brain fog, stomach issues, painful periods, and sleep disturbances. A recurring theme was the importance of not dismissing your own pain, finding a compassionate doctor, exploring multiple treatment approaches including medications and alternatives like naturopathy, and recognizing that fibromyalgia affects everyone differently so managing it requires patience and self-advocacy.

A MyFibroTeam Member

My pains vary, some I describe as an ache, others are sharp and shooting, with occasional tingling, itching and or burning. I also have bouts of severe fatigue and fibro fog. Hope that helps

July 12, 2017
A MyFibroTeam Member

"Normal pain pains people feel every day..." sweetie, no pain is normal. Tge pains with fybromyalgia are varied, they all stem from the nervous system and the excessive chemicals in our bodies that tell us something is painful. Someone punches a person on the arm, a person will feel pain. My 3 year old pats me on the arm, I feel it as pain. Over stimulation of nerves, lack of proper sleep, fatigue, all contribute to a variety of different types of pain. A common one is the feeling of burning patches on the skin, like someone poured boiling water on there and your clothes hurt, is a common one. Muscle pain, joint pain, pain on touch. There are ways of reducing pain a little. Its not all bad. X

July 12, 2017
A MyFibroTeam Member

@KTYZ ..MINE PERSONALLY , IS LIKE HAVING THE WORST FLU EVER!ALL OVER U HURT ! Neck,Shoulders,Arms,Back,legs,n not all the time,but it's there... my feet! MY hips r the worst I guess next my neck n shoulders....Just touch my neck,shoulders or legs n we will get along! I went to a new Dr n Wow! He almost got HIT,ON ACCIDENT BC I told him, PLEASE DONT TOUCH UNLESS U R VERY GENTLE! . N he touched my leg n w his hand where the knuckle was n OH MY...I ALMOST CAME OFF THE TABLE!I started crying ! So painful! So Hon it radiates all over ur body some days it will b worse than others...Temps n stress changes it all! FOR ME! Gentle hugs to u!

July 12, 2017
A MyFibroTeam Member

It's crazy how long I've put up with pain thinking it was normal. And not wanting to complain either, because we live in a world where you always have to keep moving, and if you're not living your days going 100miles an hour, then you're lazy or not good enough! But enough is enough! I've had to cut my hours at work recently, which is scary! Actually the whole thing is scary, and I'm glad I can write that here, as I find I can't really say it to people, because they don't understand! I sometimes get pain in one foot that is that bad I can't walk on it, and my hips hurt all the time. I can't carry heavy things, and I can't bend my elbows too long!
Do you guys have stomach issues? Or painful period/ovulation time? Like extreme pain?

July 14, 2017
A MyFibroTeam Member

I experience my fibro pain as aches, as sharp, as dull, as piercing, as searing, as throbbing (occasionally), as burning and a myriad other descriptors. It varies hour by hour what type of pain you might experience. Pain isn't normal, I have come to find out.

July 12, 2017

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