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A MyFibroTeam Member asked a question 💭
Salt Lake City, UT

Anyone have POTS and taking fluticortisone? Does it help? Or have awful side effects?

July 5, 2017
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A MyFibroTeam Member

@dianegolden-no such thing as dumb!

Fluticortisone (spelling?) is used to increase blood volume for PoTS patients so the blood doesn't pool in the legs leaving little blood for the brain, etc.

Postural orthostatic
tachycardia syndrome

http://www.dysautonomiainternational.org/page.p...

Mecfs

https://batemanhornecenter.org/mecfs/

Hope that helps

July 5, 2017
A MyFibroTeam Member

I feel dumb, but what is POTS, MECFS, and fluticortisone?

July 5, 2017
A MyFibroTeam Member

Fludrocortisone is used to prevent postural drop in BP

July 5, 2017
A MyFibroTeam Member

Basically it's a postural drop in blood pressure that sends you dizzy and you can collapse

July 5, 2017
A MyFibroTeam Member

Thank you OMgirl. It is hard when you have POTS, fibro and MECFS. And I'm not on any medicine right now. My doc suggested this medicine, and I wondered what people's experiences with it are. Somehow I gotta force myself to add more salt into my foods. 1/4 tsp in your oatmeal is just awful!😬

July 5, 2017

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