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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Wilton Manors, FL

I am on disability due to other health issues than fibromyalgia but recently I was confirmed permanently disabled because I have difficulty functioning due to fibro. I can do the basic things like bathe, change my clothes, feed myself and at times cook (when I am not in pain or exhausted). I do not know if people are aware that medically determinable impairment (MDI) of fibromyalgia is considered a disability. This means that someone who is unable to work may be eligible for Social Security… read more

June 19, 2017 (edited)
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Answer Summary

Members shared their experiences navigating the lengthy and stressful Social Security Disability process for fibromyalgia, with approval... Read more

Members shared their experiences navigating the lengthy and stressful Social Security Disability process for fibromyalgia, with approval timelines ranging from a remarkably quick three months to over five years and multiple appeals, often requiring standing before a judge. Several members emphasized the importance of thorough medical documentation, working with disability lawyers or local advocacy organizations like Citizens Advice in the UK, and being prepared for a potentially exhausting process that can worsen symptoms through added stress and financial strain. A recurring theme was persistence in the face of repeated denials, with members offering encouragement to keep fighting and reminding each other that the benefit exists precisely because fibromyalgia can be truly disabling.

A MyFibroTeam Member

@A MyFibroTeam Member I do not know but if you are at pension you may be at or close to Supplemental Security Income (SSI) eligibility age. Best thing is to contact Social Security or you can check online at https://www.ssa.gov/ssi/text-eligibility-ussi.htm

June 19, 2017
A MyFibroTeam Member

Also if you're on disability you are on Medicare. Or Medicaid. Any appliance such a purchase such as walkers, wheelchairs, adjustable beds are all tax free if you get an Rx from your Dr. it's saved saved me a lot a money on my adjustable bed. 🍫❤️B

June 21, 2017
A MyFibroTeam Member

I was blessed I was 56 filed without lawyers have a lot of issues lots of dr papers got disability in 3 months no court or anything decisions in mail approved maybe cause I got ssi in mich and midacaid already have my own blue cross ins in mich state pays ssi

June 19, 2017
A MyFibroTeam Member

I'm STILL awaiting an answer for my 3rd appeal (with a disability lawyer) and its been about 2 1/2 frickin years. The pain and the stress of waiting for money that I worked for...for over 20 years, is why I tried to end my life. I don't understand how it can take this long. It's so fustrating. And the stress just triggers more flares.

June 19, 2017
A MyFibroTeam Member

can you claim this benefit if you are of pensionable age xx ivy

June 19, 2017

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