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I read some people's stories and it scares me. I feel I cope quite well with the pain most of the time. Although I have only just been diagnosed I believe I have had this illness since my mid 20s (I thought pain was just par for the course of being a busy mum who worked and also raised children and ran a busy home) and I didn't realise until just recently that not everyone ached somewhere or everywhere every day. It's the chronic exhaustion that hits me hardest. Sometimes I feel like I've been… read more
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Members connected over the overwhelming exhaustion that defines fibromyalgia for so many, with several sharing how fatigue brought them to... Read more
It is so important to try and keep a positive frame of mind - hard on bad days I know, but one thing I have learned over the many years of suffering this illness, is that a negative mental state will increase you anxiety, which in turn will increase you pain. Keeping busy is vital - don't give yourself too much time to sit and think about how awful you may feel. But keeping busy must never be physically demanding activities - just be gentle and passive with whatever you choose to do.💐
The exhaustion is also the worst part for me....hits suddenly and uexpectedly, you dont know how long it will last BUT often you cant sleep.....its a cruel illness.
I love my sleep but the pains excruciating sometimes i cant sleep and since ive been working its worse than ever i dont know anymore my feet are so sore my legs are swelling since working the pain is all too much
Have a read through my bio/profile it might be helpful xx
I go through stages of feeling scared too. But this year I am in way less pain than last year so I try to remain hopeful and try not to get scared. Worrying about it only puts more stress on our body so I try to remember to take 1 day at a time.
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