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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Lebanon, KY

Do you ever feel like after trying to get a diagnosis for so long that maybe you got what you asked for? That maybe it really is all in your head? That maybe you made the symptoms fit the diagnosis?

May 10, 2017
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Answer Summary

Members connected deeply over the conversation of diagnosis and self-doubt, with many sharing their relief at finally receiving a fibromyalgia... Read more

Members connected deeply over the conversation of diagnosis and self-doubt, with many sharing their relief at finally receiving a fibromyalgia diagnosis after years of searching for answers and being told their pain was imaginary. Several members explained that fibromyalgia is now understood as a real neurological disorder with measurable physiological differences, not a mental condition, and emphasized the importance of finding doctors who listen and stay current with research. A recurring theme was validation and encouragement, with members affirming that the pain is real, not in anyone's head, and that while the diagnosis may bring challenges, it also brings the power of understanding what you're facing and knowing you're not alone.

A MyFibroTeam Member

I went several to doctors but I was diagnosed with fibro first and then several other illnesses after so don't think that way besides God will take care of us anyways. Hugs

May 10, 2017
A MyFibroTeam Member

I got told Fibromyalgia out of the blue, was seeking Osteoarthritis treatment options.
To me I believe we're all given challenges in life and you can sink under the challanges or try your best to rise to the challenges you are dealt.

May 10, 2017
A MyFibroTeam Member

I had so many tests and went through so many years of searching for the answer that no, once I was finally diagnosed with fibro, I was relieved that there was a name for what I had. All the research I've done since my diagnosis has confirmed that I was diagnosed correctly. I also go to a rheumatolgist who specializes in fibro so I'm sure he would know if the diagnosis were wrong. Since the symptoms have lasted for over 30 years I don't think they are going to be changed by anything in my head. I just have to get my head to figure out how to work with what I have.

May 10, 2017
A MyFibroTeam Member

Not really. Fibro is a diagnosis of exclusion-used to be. There is actually a test for it now, but it costs about $700, so it is basically useless right now. They have discovered that people with Fibro have several physiological differences, including too many receptors in the palm of the hand, which regulate blood flow. This disrupts the proper flow of blood through the body and the brain, causing neurological problems that manifest in a wide variety of ways. That is why they now call it a neurological disorder rather than a mental or sleep disorder as they used to. So much more is understood about it now, it is just that many doctors do not bother to follow current research and remain ignorant. As a result, they have a habit of making their patients feel like it is all in their head. What you are feeling is very real.

May 10, 2017
A MyFibroTeam Member

when I was told it was all in my head, that there was nothing wrong with me, I really thought I was going mad, no sleep because of the pain for night after night, until I didn't know whop I was or where I was, don't let anyone tell you you are imagining it all, you are not, the pain is real!!! not in your head. xxxxxxxxx

May 13, 2017

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