Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Stockport, UK

I'm been told by a specialist my vitamin D is half of what it should be, which came as quite a shock as I'm always out and about with my job. I'm always in vest tops. I will be speaking to my GP on Wednesday about it to see if this is another issue, as I just can't get my head round it at all. Yes I know I could take a vitamin tablet but from reading up online I shouldn't have a vitamin D problem.

Anyone else had this problem?

May 7, 2017
 · 
Reactions

Answer Summary

Members widely shared their experiences with vitamin D deficiency, which many described as surprisingly common even among those who spend... Read more

Members widely shared their experiences with vitamin D deficiency, which many described as surprisingly common even among those who spend significant time outdoors, with levels ranging from extremely low to nonexistent despite sun exposure. Several members outlined their treatment regimens, including prescription-strength doses from 1,000 to 50,000 units weekly, over-the-counter supplements, and quarterly injections, though many noted that raising their levels took months and didn't always improve their fatigue or pain. A recurring theme was the strong connection between fibromyalgia and vitamin D deficiency, with members emphasizing the importance of asking doctors for testing, advocating for proper supplementation, and understanding that absorption issues or other vitamin imbalances might require adjustments to treatment plans.

A MyFibroTeam Member

Thankfully my GP gave me some sleeping tablets on Wednesday but not to take every night I have done since early Wednesday and I'm going to take one tonight then stop and see if they have managed to break the cycle. Plus I'm speaking to my GP on Wednesday as well about this.i will be able to function again hopefully even if sleep does reduce but at least I've had a few good nights and will still have spare tablets. He won't give me them long term and I understand that and I don't want them long term either I don't want to be addict but I also need sleep. Sending hugs, I hate this disease and everything else it throws at us x

May 8, 2017
A MyFibroTeam Member

Vitamin D not important? What???
It's so important! We need it to absorb calcium to make our bones strong. Vitamin D deficiency can also contribute to certin kinds of cancer.
People that live in a four season area, it's a good chance you could be D deficient during the cold months. That's when I supplement.
xxxx

May 7, 2017
A MyFibroTeam Member

Yes and just got my 4th installments in vitaminD also keep check on vitA-B and a multi vitiami will also heel some results.

May 7, 2017
A MyFibroTeam Member

Yes! My dr. put me on 1000 units a day a year ago, tested just last week and no improvement at all. He put me on 50,000 units once a week! Yes, 50,000. We shall see if it helps, I'm exhausted all the time and can't sleep.

May 7, 2017
A MyFibroTeam Member

Yep, I had to take prescription strength D3. Now my dr. 5,000 units a day and that keeps me midrange. Low levels of D in itself can cause pain

May 7, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Meadville, PA

A MyFibroTeam Member asked a question 💭
Foster, RI

A MyFibroTeam Member asked a question 💭
Warren, MI