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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Reading, PA

How do you know if your having a long period of good days or possibly going into some king of remission.
I'm going on a week pain n exhaustion free. And and taking it easy because I don't want to pay for it later. Everyday I'm waking up scared that everything will be back but knock on wood so far it's not.

Should I just be really greatful for some really good days but know that any day it's going to come back??

Everything in me wishes it wouldn't.

May 2, 2017
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Answer Summary

Members shared deeply about the uncertainty of good days with fibromyalgia, with many describing similar experiences of pain-free periods... Read more

Members shared deeply about the uncertainty of good days with fibromyalgia, with many describing similar experiences of pain-free periods lasting anywhere from a few days to several weeks before symptoms returned, sometimes suddenly and intensely. Several members encouraged enjoying and being grateful for every good day while staying cautious not to overdo activity, with practical advice including keeping a food and medication journal to track possible triggers, pacing gently, managing stress, and recognizing that weather and diet can play significant roles in symptom patterns. A recurring theme was the emotional challenge of waiting for the pain to return during good periods, balanced by encouragement to stay hopeful, embrace each comfortable moment as a precious gift, and remember that while fibromyalgia has no cure, longer stretches of relief are possible and worth celebrating.

A MyFibroTeam Member

I think because I started this in my 20's and did not know what it was that it did go into remission for yrs and would come back. Unexplained muscle pain, migratory pains that popped up and left without any reason. But circumstances of life, a big stress that happens, a death, moving, loss of a job can trigger it. I was doing good until I retired, lost my mother, brother, father with cancer, loss of pets, moving, etc. and all those triggered it. The panic attacks and anxiety brought it to the surface and keeps its alive. I had a few wks that I felt pretty good. Then the doubts , do I really have fibro play in your head. How can I feel good yet a few wks ago was in pain and miserable. You start to believe that its in your head. I think each of us has a different story on how it plays out in our life. If it was just one or two symptoms that you gauge it would not be so bad. But the random symptoms that pop up and last an hour , a day , a wk and then disappear for something new to pop up is what gets me down. I hate the unknown. I hate that on good days I am waiting for the other shoe to drop . Its hard to enjoy the days you feel good cause you are expecting it to end in an hour or a day. When you get sick feeling its hard to always know if you have a virus or if it is a flare up. Some flares feel like you are getting the flu. It just doesn't seem to go away. Not sure I am answering your question as there really is no clear answer to it. So many factors play into this disease. Age, stress, other illnesses, how fit you are, gender, etc. So I say this....on the days you feel normal embrace it. Be positive and happy and try not to stress over the little stuff. Change what you can and accept what you can not and enjoy life.

May 10, 2017
A MyFibroTeam Member

We have good and bad days or short periods of release from this horrid fibromyalgia thing we have. Enjoy the moments of freedom, but take it easy at the same time blessings and gentle hugs

May 5, 2017
A MyFibroTeam Member

I'm happy that you have had a week of good health, consider yourself blessed. Please try not to worry over the question of 'will I be well today'. We are not in control of this circumstance. I believe Our Lord is in total control of everything and to worry over something I can not control is counter productive. Worry and stress will aggravate our condition so, I believe it is best for me when going to sleep, to hand over myself and problems to Our Lord and know that He has it covered. Try to learn to pace yourself each day, go to bed and wake on a regular schedule, move your body gently with exercise, and Be Kind To Yourself. I don't know what your religious beliefs are and I am not trying to push my beliefs on to anyone, I am just saying what I believe and how I use it in my life. Please know, for anyone who is reading this, I wouldn't want to offend anyone. I wish for you continued good days. In friendship, Kim

May 4, 2017
A MyFibroTeam Member

Yes I have good weeks for times than all sudden wake up with pain .ya never know with this when you can have a flare up ! I just enjoy those pain free days !! Hope you have many more like that πŸ’™

May 2, 2017
A MyFibroTeam Member

I would say enjoy it. We all have this disease that has no cure. When I feel good, I still take care not to overdue it. Enjoy the good times when you have them.

May 2, 2017

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