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A MyFibroTeam Member asked a question 💭
Phila, PA
April 14, 2017
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Answer Summary

Members opened up about living with anemia, with many describing long-term struggles that began in childhood and continue into adulthood,... Read more

Members opened up about living with anemia, with many describing long-term struggles that began in childhood and continue into adulthood, often requiring ongoing management through iron supplements, B12 injections, or regular iron infusions when oral supplements aren't tolerated. Several members shared practical strategies that have helped them, including eating red meat and eggs, taking daily iron or B12, and working closely with doctors to monitor blood levels, though some expressed frustration when medical teams dismissed their concerns. A recurring theme was the hereditary nature of anemia for many in the community, the physical toll it takes through fatigue and low red blood cell counts, and the importance of staying consistent with treatment even when results feel slow.

A MyFibroTeam Member

Yes I do! I have been getting iron infusion, becuz my stomach cant tolerate the amount I need from supplements.

April 14, 2017
A MyFibroTeam Member

I have a type of anemia. It started when I had two absessed teeth that were basically dripping infection into my system for three years until the teeth "exploded" into pain (which is exactly what it felt like). I had root canals done on both teeth but my body never really recovered. I became anemic and now when I have surgeries They have to have blood on hand just in case. I also had to stop donating blood.

April 22, 2017
A MyFibroTeam Member

I had anemia as a child but not now however, I occasionally have a low platelet reading which caused my Dad's death. The Dr considered it a form of cancer but did not know what causes it. I have cousins with the same problem so I am guessing it is hereditary.

April 15, 2017
A MyFibroTeam Member

Only once during Chemo. It went away after about 2 weeks.

April 14, 2017
A MyFibroTeam Member

every time i have an urine test it comes back with blood in it ! i use to bruise all over they said that i had leak some where in my body ! but that was years ago and the blood still to this day shows up on a urine test ! i let the Dr's know but they look at me stupid , so what is a person do !love and peace michele

April 14, 2017

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