Everyone Has Fibromyalgia Now? | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Everyone Has Fibromyalgia Now?
A MyFibroTeam Member asked a question 💭

I have a lot of stuff on my mind, and have so many questions to ask, as I am still newly diagnosed with having FM. It seems like everyone I meet and talk to, tells me that they have FM too. Is it just me or is EVERYONE'S doctor slapping them with the Fibromyalgia "label?!?" It just makes me wonder if it is a true diagnosis for me? My primary diagnosed me with FM but is sending me to a rheumatologist to have him/her confirm it. I can't seem to get seen by one until August because that is the… read more

posted March 29, 2017 (edited)
•
View reactions
A MyFibroTeam Member

I know what you mean. Our symptoms could be a lot of things as you found out. My worry is things can be overlooked. By going for checkups and having regular bloodwork , it gives the Dr. a total picture. I have diabetes now also. A neurologist can do the same as a Rheumatologist does, order blood tests to rule out things. I went to one. It seems like a better fit, because they say it could be the way the brain perceives pain and that is through the nerves! Hope your foot is better

posted March 29, 2017
A MyFibroTeam Member

They generally recommend a rheumatologist to rule out things like lupis, arthritis, and other disorders. If no markers for other illnesses show up, the diagnosis is fibro. If you're going to a neurologist instead, make sure they do the tests a rheumatologist would have done. I still see my rheumy, and love him. Like any doc, its a matter of finding the right people for your team

posted March 29, 2017
A MyFibroTeam Member

I agree! I can barely move some days but others that say they have fibro tend to be running marathons lol..I don't tell anyone now as all I ever seem to get is *oh I have that ..or everyone has that*...I also am waiting to see a neurologist as I think I have other issues going on but everytime I see a Dr all I get told is that it's my fibro! I went with a bad foot and was told it's my fibro without the Dr even looking at it so a week later I went to the emergency room had an x-ray and was told I had an issue with the bone.I saw the rheumatologist once ..was diagnosed and discharged..I feel like I know my own body but because I've been diagnosed with fibro the Dr's won't listen to any other possibility

posted March 29, 2017
A MyFibroTeam Member

I know how you feel I was so active before this fibro thing now I'm snappy,tired tired totally exhausted most of the time I can sleep the sleep of the dead ...I hated sleep ...I now hate loud noise,my 15 yr old love punk and rock OMG it kills my head and yet I'm an ex singer in pubs,I don't drink ...never smoked ..and thinking hurts my head ..I have rls now too,constant backache and every limb cracks at night my shoulders dislocate when I turn over but pop bk in...my elbow go stiff and lock at night it's horrid I'm an ex gymnast and swimmer but nowe I'm a shadoption of my former self xx

posted March 30, 2017
A MyFibroTeam Member

I am also newly fresh with "FIBRO".....and I have come across the same thing. Lots of people saying, "Oh I had that years ago" or "I have that too". Wait?? I'm confused, you have the same thing? or You HAD it? What does this mean, it goes away? So, some people have it like lightly and some severe? I guess I got the severe FIBRO bc I have like a million symptoms and I am currently in my ANGRY stage because I don't want this, I want my old life back. But really, I have read that this is CHRONIC, meaning persistent and ongoing, and that symptoms are manageable, but NEVER CURED.
Very difficult time for me having to ACCEPT all of this, and it confuses me and loved ones when they read or come across other people who have barely any symptoms and their lives are not really affected in anyway, and then this causes my circle to come back to me and try to downplay what has happened to me. I keep hearing you'll get better, it's not that bad or you will grow out of this, and you know what? I am NOT getting better, I am WORSE. So can someone enlighten me and lay it down, is this where this awful stigma has been created? BC some people don't have it that bad and some do, or I have even heard people FAKE IT so they can get pain meds! WHY?! WHY! Why would anyone do that? What's the deal?

posted March 30, 2017

Related content

View All
TMJ Problems With Fibromyalgia
A MyFibroTeam Member asked a question 💭
Fibromyalgia /PIP/ Disability Classification UK
A MyFibroTeam Member asked a question 💭
Lyrica Questions
A MyFibroTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in