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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Minneapolis, MN

Been pondering where the destinction is drawn b/w

ablility to keep a job
vs
Should a person be working

I'm curious to hear peoples opinions and perspectives before I share the details of the predicament that I face.

March 28, 2017
 · 
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Answer Summary

Members grappled with the complex question of when someone should stop working despite technically being able to, with many sharing that they... Read more

Members grappled with the complex question of when someone should stop working despite technically being able to, with many sharing that they pushed themselves until their bodies gave out, risking safety, collapsing at work, or experiencing severe flares that forced them to stop. Several members described finding balance through flexible work arrangements like working from home, managing their own schedules, reducing hours, or choosing less physically demanding roles, while others emphasized that the line should be drawn when continuing to work threatens personal safety or the safety of others. A recurring theme was the devastating emotional toll of losing work identity and social connection, compounded by financial strain, family responsibilities, and the guilt of needing to stop when society expects you to keep going, with one member poignantly describing how their entire life was falling apart despite technically being able to show up for 40 hours a week.

A MyFibroTeam Member

With me, I worked in a juvenile detetion center, n I couldnt risk my safety or the safety of others becuz of some of the symptons ie fatigue, brain fog, alertness etc.
So for me, I would draw the line at if it would affect ur safety or the safety of others.
Good luck in with what u decide.

March 28, 2017
A MyFibroTeam Member

Right now my job itself is ok. If I have a bad day here and there I will be moving slowly or else I get clumsy and trip over cords. And its not like my job performance has been steady this whole time.

Even though I'm a super introvert I was still able to open up to a few coworkers. I joked, asked them how they were doing, they did the same. I resembles a person with working interpersonal skills. I also was able to move at average speed like everyone else.

In the past few years I've withdrawn almost completely. I pretty much don't talk unless I need to, and not many people approach me. Which I'm ok with since i with depression and like today if I do talk I can at times completely fall over my words and have to start over now and then.

Before when I first started I was tired bc I was on 3rd shift with a new baby. I've been on a more or less downward slope of energy and ability.

This month I've started noticing a ringing in my ear that happens every few days, 2-5 days in between?

I'm making more mistakes this year and even had to take a break from welding and grind for a week, to give mysm mind a break.

Well my first work break is ovwr. Oye.

March 29, 2017
A MyFibroTeam Member

When I got to the point that I was collapsing at work I knew that it was time to stop. I think that you also need to be aware of the stress that your job causes, I was in charge of an early childhood education program the pressure was high and causing me to have flares. I had to go on disability 20 years ago. I'm a very social person and being cut off from people has been really hard. There's no way I can do enough every day to work. It's sad not to be able to do a job you loved and it takes a long time to accept my limitations. I'll never stop trying to find things that help but some days it all feels like it's too much.

March 29, 2017
A MyFibroTeam Member

It depends on what you mean by work. I think staying usefully active keeps us in better health. But I'm a SAHM, I don't have a paid job. I don't get days off or sick days, either.

March 28, 2017
A MyFibroTeam Member

I agree. If ur able to work then work till u can. I worked until I got fired for being sick. N now I don't know how I could work. But definitely if u can u should

March 28, 2017

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