Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Des Moines, IA

Next month we will drive two hours for Easter weekend. We will then leave a few days later for a week long trip. Driving to Tulsa, OK. Will break it up in two days. I just don't want to disappoint my family when my pain and fatigue kick in.

March 21, 2017
 · 
Reactions

Answer Summary

Members shared deeply personal experiences about traveling with fibromyalgia and chronic pain, acknowledging the difficulty of long drives... Read more

Members shared deeply personal experiences about traveling with fibromyalgia and chronic pain, acknowledging the difficulty of long drives while offering compassionate encouragement to keep living life despite the challenges. Several members recommended practical strategies including stopping every hour or two to stretch and walk, using pillows and cushions for support, applying ice packs or heating patches to painful areas, bringing a TENS unit, and taking medications or Aleve before departure. A recurring theme was the importance of self-care without guilt, with members emphasizing staying hydrated, eating well, packing comfort items like blankets and massagers, allowing time for rest and naps during visits, and leaning on faith and prayer to get through difficult trips.

A MyFibroTeam Member

You are brave to take the long drives. I have had fibromyalgia for about 35 years. My advice is to treat yourself well. Eat well during the trip , keep hydrated and stop often to stretch your legs and back. Take pillows to sit on lean on. I hope this helps. Have a great trip.

April 9, 2017
A MyFibroTeam Member

I would never wish this awful disease on anyone but I wish our loved ones could just experience it one day what we go through !! People who don't have it I think sometimes think we are crazy 😩

March 22, 2017
A MyFibroTeam Member

I take ice packs to use in the car and while visiting and a cooler to keep them in.
I keep a massager with heat in my drivers seat even for short drives. I take low carb gluten free food water bottles and a re-fillable cup of coffee. Stopping every hour or 2 and walking around, using the restroom or getting lunch helps.

March 22, 2017
A MyFibroTeam Member

I haven't been on a road trip in about 5 years. When I do travel I think hard about how to comfort myself. I bring along a few things and I let the hubby do the driving. I bring my music that I love (ipod) I don't want to bother anyone with just my music. I bring a big software pillow, fruit and some candy and always stop to eat, stretch your legs. If you have to drive make for maybe and hour then rest. Bring water to take your meds and keep hydrated. Make your trip as comfortable as possible. Enjoy your trip.

March 22, 2017
A MyFibroTeam Member

Take anything soothing to you along with you. Focus on what gives you peace and comfort. I like listening to K-Love on the radio. I love to read. I will keep you in my prayers! Hugs! XOXO ♡♥

March 22, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Great Yarmouth, UK

A MyFibroTeam Member asked a question 💭
Crewe, UK

A MyFibroTeam Member asked a question 💭
Derby, UK

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In