Do You Not Work Due To Your Fibromyalgia Anxiety And Depression And Have Given Up On Getting Disability Because It's Been Denied? | MyFibroTeam

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Do You Not Work Due To Your Fibromyalgia Anxiety And Depression And Have Given Up On Getting Disability Because It's Been Denied?
A MyFibroTeam Member asked a question 💭
posted January 17, 2017
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A MyFibroTeam Member

@A MyFibroTeam Member I am in a self paced online program but I need to make sure I have everything done before I go back to school next year (If i do)
Every state has different homeschooling laws and I would rather just personally have a real high school diploma instead of a homeschool diploma. I'm less likely to get hired because employers are thinking of happy cheerful people and often times homeschooling is associated with social withdrawal and social awkwardness

@A MyFibroTeam Member The beginning of my sophomore year I did have a note from my doctor asking if it was in any way possible to alter my classes so that I didn't have 8 hour days and they said no. They have all my medical history, and they know that one of the assistant principals had to call an ambulance when I passed out on school grounds. It's not like they don't know. I've tried. My mom and I have both tried. The school just isn't willing to work with us.
You're right. I do have a right to education. Any accommodations I asked them to make for me never panned out. They always came up with something to prevent it from happening.
You're very right, and I know you're right, but they will not work with me. I guess since i'm not visibly physically disabled like in a wheel chair, my health issues don't count. :-/

Thank you.

posted January 20, 2017
A MyFibroTeam Member

Don't give up sweetheart, when you go back to school, go with a letter from your doctor and your medical history, you have a right to an education, and just like they have to make accommodations for special needs people in wheel chairs and other health conditions, they have to do the same for you. I understand your condition, just take one day at a time and let God fight your battles.

posted January 19, 2017
A MyFibroTeam Member

Do not give up, keep appealing because with fibromyalgia, there are several conditions and unfortunately they don't all come at the same time. When you do get approved, they will have to go all the way back to when you applied and give you back pay.

posted January 19, 2017
A MyFibroTeam Member

I am not able to work, I wish I could, but I could not be reliable because of the pain, or the migraines. My husband & I are on disability, it's not much, & we struggle every month.

posted January 18, 2017
A MyFibroTeam Member

I can't go to school. I'm 17, and this is my junior year. I'd give anything to go back this coming year for my senior year, but I don't think I could make it. I've been studying like crazy here lately trying to get caught up on all my work so maybe I can go back if there's some miracle or chance I can survive a year at that school.
When I was there, nobody really helped me. Nobody saw what was really happening to me. I woke up and put on makeup so that people wouldn't know what I was struggling with until it got so bad that I cried in class a few times and passed out on the stairs, then people started to wonder.
I left last year because nobody was willing to help me. I was denied a custom schedule. I was denied an elevator key to use the elevator instead of using the stairs (in my case, exercise does not help my pain.) I was also told by a counsellor that I "didn't look sick."
There's so many things I'll miss out on if I don't go next year. You only go to high school once, and I don't want to let this illness rule my life, but it's kind of hard to make plans when you have no idea how good you'll feel and how much you'll even be able to go.

I tried to draw disability. They said that i didn't qualify because I could still feed/bathe/clothe myself. My doctor doesn't prescribe me certain medications because of my age which makes me feel discriminated. Klonopin is the only thing that helps my sleep (and trust me, I've tried everything from otc meds to herbal remedies and I have a long list of sleep meds I've been prescribed) And my doctor will not prescribe me anymore because of my age. They don't want me to get addicted to drugs at a young age, which is understandable, but it's still denying me treatment since it's the only thing that works. ????
Very messy situation. :-(

posted January 18, 2017

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