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A MyFibroTeam Member asked a question 💭
Stockport, UK

Those of you who suffer from it can you please describe your symptoms.

I mainly notice at night because I'm at rest but because I've been spending a few days in bed these past few weeks have noticed it during the day too.

I've called it twitching and it was a side effect of amitriptyline last year, that was stopped and it calmed down but I still twitch now.

Last night it was so bad I was bouncing off the bed, my arms, legs, and stomach all jumping and twitching so much I've hurt and ached… read more

January 15, 2017
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Answer Summary

Members opened up about experiencing restless leg syndrome and twitching, sharing symptoms ranging from mild nighttime discomfort to severe,... Read more

Members opened up about experiencing restless leg syndrome and twitching, sharing symptoms ranging from mild nighttime discomfort to severe, seizure-like muscle spasms that disrupt sleep and cause pain throughout the day. Several members offered practical solutions that have helped them, including Ropinirole and other Parkinson's medications, iron infusion therapy for iron-deficient anemia, Mirtazapine for nighttime relief, magnesium supplements, tonic water containing quinine, thermal socks, and even placing a bar of soap at the foot of the bed to release ions. A recurring theme was the connection between RLS and fibromyalgia, the importance of asking doctors to check iron and vitamin B12 levels, considering a sleep study to better understand nighttime symptoms, and finding the right medication through careful trial and adjustment since many members experienced negative reactions to common drugs like Amitriptyline.

A MyFibroTeam Member

I get those twitches mostly when my body is trying to relax. My RLS affects me a little different. Its from the knee down usually at night when trying to sleep, n the constant feeling of having to move my legs, kick, twist my ankles, stretch my calves, or have to walk in place. It had gotten really bad almost nightly, n bringing tears to my eyes. My dr had told me that low iron can make RLS worse. We found out I had iron deficient anemia,. Since I cant tolerate iron in pill form, he sent me for iron infusion therapy. I havent had a bout of RLS in 8 mos. I still get the twitches, that feel like little electrical shocks, which I consider to b different from RLS.
If he does blood work have him check ur iron.
Good Luck Wednesday!

January 15, 2017
A MyFibroTeam Member

Hi, I have the same problem, I read an article about it and a a Dr from America said to put a bar of soap at the bottom of the bed under the sheet, I have been doing this for about 3months now and it has helped with my restless legs.. I hope this helps.

January 22, 2017
A MyFibroTeam Member

I am on amitriptyline and for a while had twitchy legs. My doctor doesn't believe it causes it. The twitching has stopped now and I am still on them.

January 16, 2017
A MyFibroTeam Member

Yes I get the twitching, and very bad dry mouthx

January 16, 2017
A MyFibroTeam Member

I will be mentioning it on Wednesday @A MyFibroTeam Member last night was the last straw I'm lay here now still twitch I feel like I've stuck my fingers in the plug socket, just as I get nice and comfort I twitch and jump. X

January 15, 2017

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