This question will seem strange to many. But it is in fact very applicable. What we meant is really this: is your fibromyalgia triggered by an unknown cause (therefore primary), or did it evolved from a former medical condition (hence, secondary)?
Based on research done till date, fibromyalgia can manifest from other medical condition especially those which are pain related illnesses. For example, arthritis, rheumatoid arthritis (RA), myofascial pain… read more
My fibro is secondary. I was semi diagnosed with lupus about 30 - 25 years ago then finally diagnosed with lupus by the rheumatologist 15 years ago. My lupus affects my brain (seizures) kidneys and lungs. Also affects my joints throughout my body. Also have a multitude of other conditions - hypothyroidism, heart problems, asthma, (growth in my left lower lobe in my lung which is being watched carefully) they don't think it is anything serious, chronic hepatitis non-defined type, osteo arthritis in my back and a fracture in my back that wasn't dealt with when it happened so healed poorly (fell down stairs during one of my seizures. Also have arthritis in my hands, wrists at this point. Macular degeneration and this list goes on. It was bad enough with the lupus and since they have had a problem finding the right treatment for it over the years it has not helped. Now with the fibro added, new type of pain added to the mixture. This is also being treated with various meds - testing to see what works best, so far we are not having that much luck. Due to my many health conditions they have to be careful what they give me as I have had some very serious reactions to some of them. It is a slow process, but I am hopeful they will find the right thing. Friend just advised me of Moringa tea and I started it today. She makes a 12 cup pot of it and drinks it throughout the day. Has been doing it for just over 2 weeks and both she and her husband have renewed energy, less pain and the inflammation in their joints seems to have improved. It has some very positive reviews on line so felt it might do me some good. Here's hoping it helps in some way. Thank you for this article, greatly appreciated.
This is a great question, thank you for posting.
For me, at this stage (let's be honest, things change constantly) I can only consider mine as primary because I have no idea what the cause might be, but it could have been triggered by any number of physical or psychological events.
Prolonged stress or trauma? Tick!
H. Pylori infection? Tick!
Possible Crohn's disease that no one will confirm? Tick!
In some cases above it's hard to know which came first (much like the chicken or the egg). It's entirely possible mine is secondary caused by one of the above but too hard to know, but I will definitely be taking this question to my doctor. Thanks again!
I believe mine is secondary. I had chemo and radiation for breast cancer 8 years ago. The cancer is gone, hallelujah, but I developed neuropathy in both lower legs that still persists, much to my doctors' surprise. Then I realized my arms were feeling like I had worked them both to muscle failure. When I talked to my neurologist about it, he was stumped. But he also, very thankfully, admitted he was stumped, and sent me to a rheumatologist who diagnosed the fibro.
@A MyFibroTeam Member Wow, question of the day right here.
To answer, I believe in my case Fibromyalgia is secondary. The Rheumatologist certainly hinted to that (but didn't confirm as such)
I've had arthritis... formerly muscle strain, Sciatica, Lumbago and "You've had an accident but you won't admit it. Why not?"... the GP for some reason avoided giving me a straight answer or diagnosis for 5 years which led to some very hard times for me, being expected to work even when I simply couldn't (I remember one time having to push barrows of bricks around almost shuffling on my knees... my back had just completely crapped out) being denied benefits and ending up homeless and broke (drugs and alcohol came in there somewhere... hey, I was kind of lost for a while) And as mentioned above, the GP even convinced themselves that I'd had a major accident that I hadn't reported that had healed badly... I dunno, like I was in a motorway pile up or gangland shootout or something and patched myself up at home...
Eventually they fixed on arthritis of the Sacro-Iliac joint but even by that point I knew it was moving and spreading. Fast forward 13 years to 2014 and Fibro comes along like Noah's flood and with it the arthritis multiplies more in a year than in the 17 years before it... and I'd been slaving, grinding my back down hard for years. I remember doing the most crazy stuff considering I had a dodgy back but I had no choice and no other path open... but I think it definitely took going through the wringer with one to bring the other on. I remember how much I could hurt with arthritis, easily as much as with Fibro only more localised (Arthritis has made me cry with pain, Fibro has only made me cry with frustration so far but it's been close)
So yeah, I didn't do myself a lot of favours but as I said, I had to do to get by...
Now of course, we know the back issue is Ankylosing Spondylitis to be specific.
Yep, I think it's a secondary condition of Fibro which is a possibility I had mulled over before, I had reckoned it was in answer to overdoing everything and taking too much s*** for years... seems that's about right.
I'm going to look into this more though and ask some questions of the medico's when I get the chance.
in my case i was 12 , i used to love roller skating even had trophies so i would start hurting so i just thought it was because i was very active sports , skating boys ! and then i found out what it was !! that DR passed and then on for more then 20 years i was told it was in my head ! and i know i was not crazy , i mean you no if you are hurting, was told to go to a shrink and he gave me sleeping pills so from the age of 12 i have been on one or another sleeping pills ambien was the worst !!!!!!!i would thank i was awake smoke a cig and fall asleep i have so many sheets and blankets i even burnt a 500.00 goose down comforter ! i am so sorry i am hurting so bad my back ,my back on my lord carry me threw this ! see i have kidney stones, bulging disk in my back , fibro and they messed upon two bladder repairs so i have trouble getting the urine out so i don't know what is ! but i hurt ! love and peace michele