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A MyFibroTeam Member asked a question 💭
Minneapolis, MN

I'm just curious about whether mine was caught early on or if I just have a milder case. My pain is usually localized to tender spots, and the muscular pain is akin to having worked out and everything is sore, not necessarily truly painful. The worst of my pain is highly localized to my joints and, some days, my right leg. In addition, I have GI symptoms, anxiety, and a few others.

Thoughts?

December 20, 2016
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Answer Summary

Members shared how fibromyalgia manifests differently for each person, with symptoms ranging from mild and localized pain to debilitating... Read more

Members shared how fibromyalgia manifests differently for each person, with symptoms ranging from mild and localized pain to debilitating full-body flares that make walking difficult, often worsening over time or triggered by weather changes. Several members described their diagnostic journeys, noting how symptoms evolved from isolated issues like tendonitis or flu-like aches into complex clusters including fatigue, brain fog, memory loss, anxiety, depression, and GI problems, with some waiting years or decades for proper diagnosis. A recurring theme was the challenge of explaining invisible pain to others, the frustration of being doubted due to age or functioning ability, and the validation found in realizing that varied pain tolerance and symptom severity are normal within the fibromyalgia experience.

A MyFibroTeam Member

Mine started with like flu like symptoms I couldn't shake. I seriously thought I was trying to shake off the flu forever. The aches and sluggishness. That was in 2009(?). And it all escalated from there .
BUT, I was always tender to the touch, even as a child if you poked me it would make me cry it just hurt that bad. But at the same time I have a high tolerance for pain that didn't consist of a one single poke. Very weird to think about.

December 22, 2016
A MyFibroTeam Member

I was diagnosed in 2002 at which time I could barely get out of bed. There are months that will go by with no pain, then others it's difficult to walk, the pain is all over. I think for me the weather really has an effect. You could be at an early stage or what you are currently doing-eating right, sleep, stress level is all good so your pain level is lower. I hope for you it stays this way. I hope this helped:)

December 20, 2016
A MyFibroTeam Member

I have flair ups were I can't walk it's to painful and it's all over my body but it did start just in my joints but I'm having really bad memory loss enough that I failed memory tests and I have one more 5 hour test to do.. If I fail that I will be diagnosed with early onset Dementia .. I pray it's just a bad case of fibro fog.. Anyone else having memory issues???

December 21, 2016
A MyFibroTeam Member

I spent some time trying to work this one out a few years ago, I was diagnosed in 2011, I'd never heard of it and I thought my doctor was bogus. Turns out he wasn't at all. My perception of pain is that it has to be severe to complain about it, I've been told I have a high pain tolerance which isn't necessarily a good thing, but to add to this, I also thought for years that everyone experienced this type of pain so I didn't complain or even register a problem. What brought it to light was all my other symptoms, and there are tons of them. As it turns out, I have almost the full spectrum of symptoms but none are so severe that I can't function or at least appear to function (!!). Whereas other sufferers have fewer symptoms but with greater severity, so they struggle more so day to day. It was a revelation of not the best kind when I realised all this pain was not normal and that I had been suffering in silence for no reason. I felt like an idiot.

December 20, 2016
A MyFibroTeam Member

My daughter also has Fibro but much milder. It wasn't until she was diagnosed in her mid 20's that she believed my symptoms. It's hard to explain to people that have never experienced this kind of pain or as I describe it weird symptoms that only a Fibro person would get.

December 20, 2016

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