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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Drexel Hill, PA

Hi, I got diagnosed with fibromyalgia in 2013. Up until that point I worked full time. All my life. I'm 2013 cut back to 3 days a week with shorter hrs. About 6 weeks ago I was in soooo much pain I had to take a medical leave.....I am a single parent to 2 children, my question is . I am a hairstylist and have no income whatsoever. I am waiting for my ssi appeal hearing. But we all know that could take years..... would working 1 day a week for 4 hours, hurt my ssi case?? I don't know what… read more

December 9, 2016
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Answer Summary

Members shared their varied experiences navigating Social Security disability claims while managing fibromyalgia, with conflicting advice... Read more

Members shared their varied experiences navigating Social Security disability claims while managing fibromyalgia, with conflicting advice about whether working part-time helps or hurts approval chances, though most emphasized the importance of hiring a specialized disability attorney who can clarify work-hour limits based on individual circumstances. Several members stressed the critical need to thoroughly document all symptoms and medical visits, obtain disability confirmation letters from specialists, review medical records for accuracy, and consider qualifying under co-occurring conditions like depression or anxiety when fibromyalgia alone may not be enough for approval. A recurring theme was the frustrating reality of needing income to survive while fearing that any work could jeopardize benefits, combined with the emotional toll of invisible illness, unsupportive doctors, and a system that often denies claims multiple times before eventual approval.

A MyFibroTeam Member

I'm in PA and on disability but when I qualified back in 2012 my lawyer said I wouldn't qualify based on fibro because even though I couldn't work due to my pain, because I wasn't using a wheelchair or anything, I wouldn't qualify so I qualified instead on my depression and anxiety disorders. If you don't have a lawyer, I'd get one - you're more likely to qualify for disability with a lawyer than without. Good luck. It's super hard. I'm so sorry.

December 11, 2016
A MyFibroTeam Member

@A MyFibroTeam Member I think that's when you are already collecting SS. From everything I read it's best you are not working at all

December 9, 2016 (edited)
A MyFibroTeam Member

I saw a case where the judge was impressed with the woman that continued to try and work. Yes I have heard it is better not to work as well. I would talk to your attorney and he can tell you how many hours you can work.. also...get the records from all of your doctors and read them. See if they are documenting what you are telling them.

December 14, 2016
A MyFibroTeam Member

@A MyFibroTeam Member if you can have one of the specialist you are seeing fill out a form saying you are disabled it would help.

December 10, 2016
A MyFibroTeam Member

I had a temp job and worked 40 hours per week up until I got my approval.

December 10, 2016

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