Hi All, just wondering if anyone has come across a Pain Clinic or Support group for Fibromyalgia in the UK or in particular Leeds? I am just fitting the piece of the puzzle now, I have been living with FMS for a very long time. I am getting so frustrated with the lack of support from medical professionals and people who claim to be a support group but I am still waiting for their call, having started inquiry 6 months ago. I have been now discharged from Rheumatology, and I don't think that was… read more
I don't get this discharged from rheumatology. When I first saw my rheumatologist he said we would be friends for life as the diseases I have do NOT go away. Because I see him on a regular basis we have a good relationship and if I want to try something different or notice something new he knows that I know what I am talking about. and listens to me. I hope you can find a doctor that will work with you.
I used to love massages and found physical therapy very helpful for a different disorder. I cannot imagine doing either one now. The poking, prodding and manipulating would make the pain worse than it already is. My whole body feels like one major tender point.
I agree, not much support here im in liverpool was sent to physio and given some exercises and offered to attend a group that i cant attend due to work and was basically told there is nothing that can be done just manage the pain. I jave joined online groups just to understand this condition but exercising causes pain and feel like theres no where to go for support its like ive been diagnosed and basically just get on with it.
Hi, I'm in Norfolk and just asked my GP to refer me to pain management. Apparently there is an excellent course at the Queen Elizabeth Hospital here in King's Lynn. I too heard that they offer acupuncture. Though it is short lasting, apparently it does help. Unfortunately, we often have to be our own advocates for such things. The referral would not have been made if I didn't ask. An NHS search may help you find local services that you can then ask to be referred to. Good luck on your journey, I hope you get what you need. Xx
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