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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Detroit, MI

In all the testing you've had done did your doctor check your Vitamin B12? I went to a functional doctor and she did a lot of tests. One came back that I have a vitamin B12 deficiency, I have read a lot of articles saying several doctors do not test for this or may not be looking for the right thing. I also found this in one of the articles

" Unfortunately, until doctors begin to look for Vitamin B12 deficiency and not macrocytic anemia, we are calling these problems things like:

Chronic… read more

December 2, 2016
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Answer Summary

Members shared widespread experiences with vitamin B12 deficiency, with many describing how testing revealed low levels that contributed to... Read more

Members shared widespread experiences with vitamin B12 deficiency, with many describing how testing revealed low levels that contributed to fatigue, nerve damage, restless legs, and even symptoms resembling mental illness, which improved significantly with B12 injections or high-dose supplements. Several members discussed their journeys with functional medicine doctors and chiropractors who focus on nutritional deficiencies rather than just prescribing medications, though the high cost of these wellness approaches and supplements was a recurring financial concern. A common theme was the frustration of needing multiple supplements and treatments to manage overlapping conditions like fibromyalgia and IBS, balanced with hope that addressing root nutritional deficiencies might offer relief where traditional medicine had fallen short.

A MyFibroTeam Member

I have had just about every test a human being can have. My b12 is good, my Vitaamin D was so low, but is now on the high side, my thyroid is now in its normal mid levels. My naturopath doesn't think that a low number on the good level chart is good enough. She believes keeping your numbers in the mid to high areas. Even with these things fixed,, I still suffer from extreme fatigue, though pain seems to slowly improving..

December 4, 2016
A MyFibroTeam Member

@RhondaBednarz I love the pool at the YMCA here but it is very expensive! Even with my insurance it's $20.00 ech time I go in. The warm water feels so good. Everything is just getting so damn costly.

December 3, 2016
A MyFibroTeam Member

get vit B shots monthly

December 3, 2016
A MyFibroTeam Member

My doctor tested my bloodwork for just about everything that can be tested. The first test showed a B12 deficiency, so I am taking a fairly large dose of a B-Complex daily. Even so, my last test still showed them on the low end of the acceptable range. B12 is supposed to support nerves and help them heal when damage has been done. After taking it for awhile, I have noticed that it helps with some of my nerve-related issues, such as Carpal Tunnel and Restless Legs.

December 4, 2016
A MyFibroTeam Member

I had a vitamin b12 deficiency which caused me to loose feeling in my left foot. After taking pregnancy vitamins and folates for a while my vitamin level returned to normal and after a few months I retained the feeling in my foot. I also suffer from severe ibs and can't seem to find any trigger foods. Although onions and raw tomato seem to make it worse. I saw a specialist who suggested adding lots of gelatine to my diet which I did in the form of gummy bears and jello. After perseverance this really helped me during flare ups. I've also found that eating small plain meals like pasta or potatoes helps too. Eat little and often is what I was advised. Peppermint tea also helps a little. Hope something I've mentioned here helps x

December 4, 2016

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