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A MyFibroTeam Member asked a question 💭
Austin, TX

Some days my boyfriend gets irritated because he says I seem out of it and not very responsive, I don't even realize when I'm like this sometimes. I guess what I am asking is how do yall talk to your significant other about why you are acting a certain way?

November 26, 2016
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Answer Summary

Members opened up about the difficulty of helping partners understand fibromyalgia, with many sharing frustration that significant others... Read more

Members opened up about the difficulty of helping partners understand fibromyalgia, with many sharing frustration that significant others initially showed support but became less understanding over time as they realized the condition wouldn't simply go away like a cold or flu. Several members offered practical advice, including printing detailed information about fibromyalgia for partners to read, asking boyfriends or husbands to attend doctor appointments together, establishing communication signals for when fibro fog sets in, and breaking household tasks into smaller chunks with equal rest periods. A recurring theme was the importance of self-care and self-advocacy, with members emphasizing that when support from partners falls short, prioritizing one's own health and well-being becomes essential, even if that means hiring help or accepting that not everything will get done.

A MyFibroTeam Member

Your boyfriend gets irritated? Does he know you have Fibro? Has he read anything about Fibro, since the woman he loves has this condition? If not, you look up symptoms of Fibromyalgia, print them out& tell him it is imperative HE understands how you are feeling and what you're going through . He must do this for you & you're relationship.. Soft Hugs

November 27, 2016
A MyFibroTeam Member

@A MyFibroTeam Member I am so sorry you are dealing with this. Is your husband retired? Have you considered getting a housekeeper to come in every couple of weeks? I'm sorry to say that when we are first diagnosed with FM and your Sig other sees the difference in your demeanor as a result ie. Pain, fatigue, etc. They are sympathetic as with any other illness ie. Cold, flu etc. And they are helpful. It's when they realize your not getting well as you would with the cold or flu and it continues to be different from day to day, the symptoms progress into other things ie. Loosing hair, urinary problems etc they become tired of it and stop helping This is because 1) They do not feel the pain & exhaustion and 2) They are not educated about Fibro. ALL I CAN SAY IS TAKE CARE OF YOU... NO MATTER WHAT YOU HAVE TO DO..... TAKE CARE OF YOU!!!!! IF NOBODY WILL HELP TAKE CARE OF YOU MAKE SURE OF ONE THING..... YOU TAKE CARE OF YOU!! Much love, prayers & soft hugs!!!

November 27, 2016
A MyFibroTeam Member

My husband used to understanding and somewhat helpful. Boy have things change!! He won't help with nothing. I have had a really rough year and was unable to somewhat keep up like I had been doing. Now my house is a mess so much to do. I was up all night trying to fix up and clean the living room. When he got up at noon he didn't even say anything about what I had been working on... I'm in so much pain now and I feel so worthless... So done with it!!

November 27, 2016
A MyFibroTeam Member

I took a pain management class at Kaiser. They taught me for one hour of work you do on anything; folding clothes, washing dishes, cleaning floors, etc.. you need to rest for one hour. Break up your chores in small bits. Learn to tell yourself you can't do it all like you use to.

It is hard for me to do this myself. I raised 5 kids and an not understanding ex-boyfriend for 16 years after being diagnosed with arthritis in the late 90's to 2004. I had to do everything:full-time job, come home cook dinner, clean house, shop and all the stuff. As my girls got older, they did help out a lot.

I am in a very healthy relationship now for 8 years. I find it hard to not be able to do everything like I use to and feel guilty at times. I am hard on myself at times and have to remind myself that it is OK it I don't get something done that was on my list of chores.

Do try to take care of yourself first of all like Renee said, only you can take care of you. I hope that he will learn to be understanding for you. I will send prayers for you.

Many blessings and hugs.

Dirah

November 28, 2016
A MyFibroTeam Member

I will realize at times that I can't think of things, speak do forget what I just said. My bf is really good at understanding and will tease me that my senior moment is back visiting. I am 53 and he is 55 yrs. I can tell when he gets frustrated, but he won't say anything to me. He also will wake me up in the night to see if I need any pain meds when he notices that I am tossing & turning a lot.

Your guy really needs to read up on fibro and how if affects you. He should go to the dr. with you so your dr can talk to him about it.

It is hard for people to understand as on the outside we look perfect and they can't see how we feel inside. I always tell people who don't understand, get the flu and know how bad you feel? Well this if fibro and it never goes away. You just don't have the nausea all the time.

November 27, 2016 (edited)

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