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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Canton, GA

Curious how many have pain that you feel when someone touches you. Such as someone pats you on the back and causes you to jump. My pain management MD does not think I have Fibromyalgia cause I don't have that all the time. I do when I'm in a extreme flare. My Rheumatologist does not agree with him

November 10, 2016
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Answer Summary

Members strongly validated the experience of touch hypersensitivity in fibromyalgia, with many describing how even light touches, pats, or... Read more

Members strongly validated the experience of touch hypersensitivity in fibromyalgia, with many describing how even light touches, pats, or sitting close to someone can cause intense pain during flares, though the sensitivity often fluctuates from day to day. Several members shared practical strategies for managing this symptom, including educating loved ones to be gentle, bringing printed scientific articles to doctor appointments to advocate for themselves, and asking their rheumatologist to communicate directly with skeptical pain management doctors. A recurring theme was frustration with medical providers who dismiss or misunderstand fibromyalgia's variable nature, with members encouraging each other to seek doctors who truly listen and understand that symptoms like tactile allodynia do not have to be constant to be real.

A MyFibroTeam Member

Oh how I love it when drs who don't have this illness try and sympathise with us or go entirely the other way and try and make us think it's in our heads !!!
I have a plastic folder with poly pockets in it and each time a new "proven scientific theory " is written I print it off and put it in and so when I go see ANY Dr my folder comes out and I say now argue with me... Now tell me that I'm imagining everything that is being proven by science 😑😑😑
It gets responses granted not always good as some do get offended but mostly they can't deny it and some even want copies.

November 10, 2016
A MyFibroTeam Member

The easy bruising is where our bloods too thin and the slightest knock causes what is essentially a bleed under the skin (bruise) x

November 11, 2016
A MyFibroTeam Member

I am sensitive to touch when the fibro is really bad. I love hugs and often hug close friends /family when they visit me, however on a bad day I find myself backing away from people/cringing and/or telling them please don't touch me. Just depends on the day and how well I feel. Sometimes even sitting beside someone on a couch is too sore even if they are on the opposite end of it!

November 10, 2016
A MyFibroTeam Member

On certain times, I awake with severe pain in like my upper thigh and upper arm and you can not touch those areas. It is kind of like shingles as I have had that also. Nothing can touch the areas that flare.

November 29, 2016
A MyFibroTeam Member

I am only like that on bad days.. stress does it too. It's more a nerve discomfort than actual pain and is sometimes a symptom of anxiety.

November 21, 2016

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A MyFibroTeam Member asked a question πŸ’­

A MyFibroTeam Member asked a question πŸ’­
Republic of Ireland