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A MyFibroTeam Member asked a question πŸ’­
Caerphilly, UK

I have my PIP assessment tomorrow. Very nervous and anxious.hAve a front a king me because I can't drive the distance.
Does anyone know how long will I have to wait for a decision?

November 8, 2016
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Reactions
A MyFibroTeam Member

I had to wait three months from first phone call to dwp to the day they made decision. This is the second time I applied for pip after the dr was so disgusted I didn't get it the first time. Luckily I knew what to expect the second time I went for assessment so I went prepared! First time I was turned down because I could open the door to the interview room, I had a handbag! My hair was dyed, I was able to have eye contact with assessor. This time I went in with my crutches, I deliberately didn't visit the hair dressers for months before, I wore a waist bag so I wasn't seen to be lifting my arms to put a bag over my shoulder.. I wore no make up, I spent most of interview looking at the floor and I did not use public transport to get to assessment. Amazing as now I have been awarded enhanced in both for looking like a blithering tramp! πŸ€”

December 30, 2016
A MyFibroTeam Member

@A MyFibroTeam Member I won my tribunal and got granted enhanced on care and mobility πŸ˜„ I'm so relieved it takes a huge toll on our life having to fight for support of clearly everyone with a fibromyalgia I'd entitled too.

I have been on dla since 1996 but only mobility. I never needed any care so I never claimed for it.

2 years ago I was so poorly and was diagnosed with tmj then fibro then tonsilar cerebellum ectopia. When the dla changed to pip they took everything away from me. I believe if you need the help to live day to day then you should be entitled to the help that's available.
I was told yesterday not to be sad. as I'm broken hearted to live on benefits for the rest of my life.. the judge imply said these are not benefits, there called "entitlements" and I wholly believe I'm entitled

I suffer lots of illness, I suffer every single day.
I could not live day to day without all the aids I've had put into my home.

I'm always here if I can help anyone xx

November 12, 2016 (edited)
A MyFibroTeam Member

I was turned down on my first application, however, I received help from the Citizen's Advice Bureau the second time, booked a two hour (exhausting) appt and they filled it out for me. My assessor was an experienced physiotherapist and she had a better understanding of Fibromyalgia than the first one and I now recieve the Daily Living Allowance, enhanced level but was awarded nothing for mobility which was a shock. My Fibro is definitely worsening and I'm unlikely to ever work again, that concept alone is daunting.

Never give up trying.

December 2, 2016
A MyFibroTeam Member

@A MyFibroTeam Member that's bloody disgusting!!!! They really haven't got a clue, I would love the staff at dwp to live a day in our shoes... lol
As Phil said the citizens advice bureau are great, so fingers crossed they help you.
X

December 17, 2016
A MyFibroTeam Member

Brilliant, so pleased for you. I'll let you know how I get on

November 14, 2016

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