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A MyFibroTeam Member asked a question 💭
Farmington Hills, MI
November 1, 2016
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Answer Summary

Members shared deeply personal reasons for avoiding the ER during fibromyalgia flares, with the most common barriers being prohibitive medical... Read more

Members shared deeply personal reasons for avoiding the ER during fibromyalgia flares, with the most common barriers being prohibitive medical costs, fear of being dismissed or treated as drug-seeking, and the knowledge that emergency staff often cannot provide meaningful relief for fibro pain. Several members described exceptions where they did seek emergency care, including falls down stairs, chest pain that required cardiac clearance, severe migraines, and one member's terrifying experience of respiratory failure after a medication error nearly cost her life. A recurring theme was the tension between knowing when pain is serious enough to warrant help and the practical reality that the healthcare system is often ill-equipped to support people with invisible chronic conditions.

A MyFibroTeam Member

The last and only time I went to the ER was the day I fell down the stairs and couldn't get off the floor. I arrived strapped to a back board with my neck in a collar. No fibro before this.

The dr. asked me to sit up. I told him if I could sit up I wouldn't be there and if he wanted me up he had to do it. Then he says lie down and I couldn't. He had to help. And I was in agony, clearly in pain. There was nothing wrong with me...

That was 30 years ago. ERs are not helpful for our invisible condition. But KUDOS TO THE LADIES WHO WENT TO THE ER WITH CHEST PAIN. Absolutely the right thing to do. There should never be a dr saying should have waited longer because you have fibro. Do it over again if needed. Sometimes you only get one shot with chest pain..no time to say maybe, maybe no. If you stay home the next pain could be fatal. At least 15 years ago in 50% of people who had a heart attack, sudden death was the first symptom. Be grateful for chest pain warning.

I'm a cardiac nurse with training in early intervention of chest pain. Denial/rationalization are very strong. I have had only one episode of chest pain while I was working in the ICU with a cardiologist sitting behind me. The minute I touched the spot I almost jumped out of my seat. It was clearly inflammation.

November 1, 2016
A MyFibroTeam Member

I did go A &E in April, but because I had chest pain, However after a myriad of tests they decided it was fibro. But they did say I'd done the right thing to go, to be on the safe side. I wouldn't go A & E if it was pain elsewhere, but in the chest you can never be too careful.

November 1, 2016
A MyFibroTeam Member

I have a question for the cardiac nurse, I have Fibro and MS, sometimes, I get such sharp pains in the ribs around the heart. I think it is called MS Hug, but my Fibro keeps pain on a 24/7 basis around the ribs and sternum as well, and the shoulder blades, and shoulders, sometimes it is confusing if it is a heart pain, or the costocrhonditis, or the MS Hug.

November 1, 2016
A MyFibroTeam Member

Even if I wanted to, the closest one I'll actually use is far enough away that they'd tell me I couldn't have been in that much pain if I could make it to them. I'd only go if a migraine was so out of control I can't wait for the pcp office to open. Besides, they can't give me anything without a driver to take me home and my husband is a truck driver. Neither teenager has a license yet.

November 1, 2016
A MyFibroTeam Member

I only go if it gets to the point my heart rate and blood pressure shoot up, other than that, I don't. The second they know it's fibromyalgia they won't do anything for you even if you are clearly in a lot of pain.(my experiences) The pain killer laws have gotten so strict.

November 1, 2016

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