I've had fibro for nearly 20 years but I went off any sort of treatment about 8 years ago because I wasn't finding any relief and the stress of the doctor shuffle was actually making me worse. Now my fibro has gotten worse and I realize I need to dive back into the treatment side of my illness and not just "deal with it" like I've been doing. I'm feeling overwhelmed about where to start ie. what kind of doctor, what kind of treatments, what questions to ask and how to best describe the many… read more
I haven't been back to see a doctor since my diagnosis, but I found a book that you may find helpful it is "The 10 best questions for living with fibromyalagia" It is full of questions you should consider asking for all sorts of problems that come up. It is by Dede Bonner.
I like my rheumatologist. He knows about fibro more than my GP. I would start by telling what hurts you the most and what you hope s/he can do for you. I would explain why you stopped before and maybe that will help him to lay out a plan. Write down everything that bothers (hurts) you and if you think of questions write them down also. Take the list with you and mark off the ones that get answered and also write the answer. I had one doctor that would take my list and would sit and we would discuss it. You need to develop a trust with your doctor so when you tell her something she will believe it. At first you might have to go often but once things get under control then maybe you will only have to see him every 3 to 4 months, which is where I am at. Good luck.
Another book is From Fatigued to Fantastic
And the Gut And Psychology Syndrome.
They are both working for me.
Sorry that you feel this way. Start with a Rheumatologist because Fibromyalgia is classified as a Rheumatological disorder. Journal your symptoms and severity. http://www.cfidsselfhelp.org/files/symptom_log.pdf (they also have other nifty forms to help put a picture together about what you feel, your triggers and what helps you. Keep a food journal if possible too. It helps to identify foods that trigger your symptoms. By doing this, doctors have a visual about what is going on and you also have a speaking tool in case you forget or get nervous or overwhelmed. Bring someone who sees your struggles to your appointments. I do this because I discovered that one of my coping mechanisms is to forget what actually happens to me on a day to day.