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A MyFibroTeam Member asked a question πŸ’­
Dickinson, ND

Some days I hurt so bad it feels as if my pain is in pain!

October 27, 2016
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Answer Summary

Members deeply connected over the struggle of explaining fibromyalgia pain that feels unbearable and layered, with many resonating with the... Read more

Members deeply connected over the struggle of explaining fibromyalgia pain that feels unbearable and layered, with many resonating with the phrase 'pain is in pain' and sharing their own descriptions like 'even my hair hurts' or 'my skin hurts to touch.' Several members offered practical strategies including heating pads and heated throws, avoiding inflammatory foods like sugar and gluten, trying supplements like curcumin and magnesium, using topical pain relievers like Aspercreme and Salonpas patches, and seeking mental health agency support to connect with local resources for financial assistance, disability applications, and medication samples. A recurring theme was the emotional toll of chronic pain combined with feeling unseen by family and doctors, met with fierce encouragement from the community to keep advocating for oneself, lean on faith and prayer, use distraction techniques, and remember that members truly understand what others are going through even when loved ones cannot.

A MyFibroTeam Member

That's what I did. NOW I'm out of work,major flair,hurting 24/7,no money coming in,smh,it was not a good decision. I'm paying for it greatly. trying to figure out how to get on track. Now I really can't afford my meds,food,housebills or anything else. NOT sure how this cycle is going end.😒😒😒😒 I just don't know what to do. I didn't chose this it chose me.

October 29, 2016
A MyFibroTeam Member

Only once did I get that bad, when I decided my meds cost too much . I do know how it feels. thankfully I don't get that way now but I can get very adjitated and finally realize that it's actually pain.It's such different pain and I've had it so long I've kind of learned to live with much of it.

October 29, 2016
A MyFibroTeam Member

@A MyFibroTeam Member

Yes I understand what you are saying. There are days that nothing helps but lying on the Heating Pad but we can't put it all over our body. lol Take care of yourself and don't overdo 'cause you know we have to pay for that. I did overdo today so I guess it will hit tomorrow or the next day. Hugs
John 3:16

October 27, 2016
A MyFibroTeam Member

Yes, only I say death has to be better than this pain well of course I don't know what death is but it's the only description I have for this pain which would probably = your pain is in pain. Smile we will get through it together.

November 2, 2016
A MyFibroTeam Member

Yes, I do. Sometimes, I swear, my hair even hurts! I joke a little there, but really, yes, there are times when you feel you have pain on top of pain. I don't have any answers for it, but you aren't alone.

October 29, 2016

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