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A MyFibroTeam Member asked a question 💭
Boonton, NJ

I keep hearing everyone talk about flare ups. I get the idea of what that is but I don't have experience in that. I feel pretty much like crap every damn day. I don't know that I have flare ups. Anyone else?

October 19, 2016 (edited)
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Answer Summary

Members offered clarity on the difference between chronic daily fibromyalgia pain and true flare-ups, explaining that a flare is when the... Read more

Members offered clarity on the difference between chronic daily fibromyalgia pain and true flare-ups, explaining that a flare is when the usual manageable pain level suddenly spikes to unbearable levels, often lasting days to weeks and making even simple tasks impossible. Several members shared their own triggers and relief strategies, including identifying stress and overexertion as common culprits, using medical marijuana and CBD to reduce baseline pain significantly, and relying on rest, medications like gabapentin or Valium, and sleep during the worst episodes. A recurring theme was the validation that feeling awful every day is real, but a flare represents a distinct escalation where nothing seems to help and life grinds to a halt.

A MyFibroTeam Member

In the early days of my illness what would now be considered a flare up lasted a solid 9 weeks with no let up or relief of symptoms. Now I may get a flare up once every couple of months that lasts a few days however it's taken a while for me to get to that point. I find my flare ups are brought on my emotional or physical stresses such as over exertion after a work out, breakups or coursework deadlines. I've found staying happy and relaxed in myself and keeping active has in the long term lowered my amount of flare ups. Maybe worth talking to your doctor about how best to manage your symptoms? I myself no longer take medication for it (and feel all the more better for being off all the nasty tablets) however some people feel much better with a little help of pain relieving nerve blockers or the like.

October 19, 2016
A MyFibroTeam Member

Every morning I wake up the same as I have been run over by something heavy pain is starting to get worse as well. I take two sevredol, one diazepam two paracetamol first thing a hot drink and something like to eat and find usually pain goes away within two hrs I get up early so my family doesn't see me in agony.

October 22, 2016
A MyFibroTeam Member

I agree with all the previous comments, a 10 on your own pain scale is a flare. But it is often described as any day when your pain and current symptoms are greater than normal. We all live with a Base line, I'm lucky that meds seem to keep mine pretty low, but in a flare, it shoots through the roof in the blink of an eye. Sleep and valium are my only cures. My last major one was five weeks. Three weeks in bed, and two weeks on the couch. My experience is my own, but I think you will find most of us have fairly similar experiences. Flares did not become a real issue until about 5 years after diagnosis, but I think that was at least three years after the condition began, so 8 years in. Prior to that fatigue was my battle, and minor, but chronic, aches and pains. X

October 20, 2016
A MyFibroTeam Member

A flare up well I have had fibro for 24 years in the natural everyday feelings are stiffness body just aches butter flare-up is different a flare-up is when you're about to lose your mind you can't take the pain anymore that's what I consider a flare up when your body is attacking itself and anything that you do or take doesn't work I haven't read the other comments but when a fibromyalgia patients is flare up we are usually in a 10 pain level just saying

October 19, 2016
A MyFibroTeam Member

I use to hurt every day all day. And didn't understand flares. Dr had me on gabapentin endocet muscle relaxers. Anti inflammatory. Increased my effector. Finally saw an internal medicine dr who gave me my medical Marijuana license. I did research and started on cbd drops(3 dross 3 times a day) and I begun eating baked goods made from weed butter!! Not only did it get me off all my meds. I now only take half endocet when a flare happens... which is normally when it's gonna rain. It brought my pain from always being 9-10 to a 5 or 6. Most days I eat some goodies ànd have a great day.

October 19, 2016

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