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A MyFibroTeam Member asked a question 💭
Taylor, MI

OK so was diagnosed in August this year. Aside from the fact that I'm ALWAYS tired, I feel like my brain isn't switched on correctly. I mess up sentences while speaking, can't remember names, repeat the same story. It like I have Alzheimer's. I feel like it's to soon to have all this as it was just diagnosed though I'm certain I've had it for quite a while prior. Anyone else feel the same? How do you cope?

October 12, 2016
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Answer Summary

Members deeply related to the experience of fibromyalgia brain fog, describing symptoms like forgetting familiar routes, mixing up words... Read more

Members deeply related to the experience of fibromyalgia brain fog, describing symptoms like forgetting familiar routes, mixing up words mid-sentence, searching for items already in hand, and repeating the same stories without realizing it. Several members shared practical coping strategies, including using smartphones as lifelines with apps like MediSafe for medication reminders, Waze for navigation, and OneNote for tracking important information, as well as relying on sticky notes, written lists, alarms, and giving themselves permission to pause when concentration fails. A recurring theme was the importance of self-compassion, accepting limitations without shame, leaning on loved ones who understand, and taking each day as it comes rather than fighting against the fog.

A MyFibroTeam Member

Julian, I had the same thing happen to me about sick time and a warning. I knew that I wasn't getting any better, but worse. So I went to the woman that takes care of insurances and is boss under him.
I told her that I needed to go on disability and I needed the forms. I also told her that I did not appreciate his letter being put on my computer, instead of talking to me in person. But I knew that he was afraid of confrontation and I would have told him like it is. Instead, I applied for Disability and I also applied for Social Security Disability.
Of course the insurance company denied me disability and I appealed it. It took me 5 months and I won my case. I also received a letter from Social Security about a week later that I was approved for that too! I received the back pay that the insurance company owed me. It was difficult to lose my pay check for that long. We ended up claiming bankruptcy! But everything worked out for me. Because I never gave up!

October 12, 2016
A MyFibroTeam Member

Yup. Fibro Fog. Part of the fibro "fun." As I told someone else I've been known to search the house frantically for the keys in my hand. Search for the glasses I'm wearing. Wear shirts inside out. Forget laundry in the washer for days on end. Ugh.

My phone is my salvation. I have apps for everything important and lots of reminders. My favorites are:

MediSafe to track my meds with alarms when I need to take something.

MyMedical to track all the information from my many doctor appointments, test results, doctor contact information

BusinessCalendar for all my appointments, birthdays, to do lists. And everything has an alarm reminder.

Codex so I can remember which books I've read and what I want to read.

Waze, a map app, to keep me from getting lost.

OneNote for miscellaneous stuff I want to remember, like crochet patterns, characters in the book I reading bc I can't remember from day to day who's who, notes from therapy, etc.

Pocket to tuck away articles on Chrome that I can't understand in the moment bc fibro fog but want to read later. Easier than bookmarks.

Hope some of this is helpful.

October 12, 2016
A MyFibroTeam Member

ive had it since 2009 and it drives me crazy ...my favorite words are ill get back to ya with that ...the answer ...i get cofused alot ,so i just stop for a second or two and wait for my brain to chach up ...same with my spelling ..it might take me two or three tries to spell a work but i get it fter awhile ..sometimes when its relly bad i cant go anywhere or drive .i just stay home ...but it does pass it might take a few days or a week ..just dont get stressed about it just sit and play with child and enjoy life as we have it .

October 12, 2016
A MyFibroTeam Member

Yes, all symptoms of FM. I get frustrated when I can't think of a simple word (door, table) even though I can see the item in my mind. Fibro fog. My 72 year old mom calls it Sometimers, since it's not all the time yet.

October 12, 2016
A MyFibroTeam Member

Faygreig, do you have any words of wisdom.. special tools for remembering things? I sure could use some!!

October 12, 2016

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