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A MyFibroTeam Member asked a question 💭
Lawton, OK

When did everyone find out they had Fibromyalgia?
I found out in 1996

October 10, 2016
 · 
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Answer Summary

Members shared their fibromyalgia diagnosis timelines in response to someone diagnosed in 1996, with dates spanning from as early as 1972 to... Read more

Members shared their fibromyalgia diagnosis timelines in response to someone diagnosed in 1996, with dates spanning from as early as 1972 to as recent as 2017, though most emphasized they'd experienced symptoms for many years before receiving an official diagnosis. Several members described how their fibromyalgia began after specific triggering events, including car accidents, falls, surgeries, mononucleosis, and other illnesses, with many noting that the condition became progressively worse over time. A recurring theme was the frustration of being dismissed by doctors, enduring years of unexplained pain, undergoing countless tests that showed nothing, and finally feeling validated when they received a name for their suffering, even though a diagnosis alone offered no cure or consistent relief.

A MyFibroTeam Member

2002. I am now at the point of the referrals and tests,meds. Using a cane and walker. It through strong will and family I keep going. I refuse to let it define me.

October 24, 2016
A MyFibroTeam Member

I had an accident at work in 2005.I was run over by a ton and a half roll of paper. It injured my left knee at first. I had surgery and 2 weeks later I went back to the doc for a recheck, that was healing but no one would listen to me about my left butt cheek. I told the doc he was going to look at it whether it was his "thing" or not. I drop my shorts and my cheek was a deep purple. I was rushed to the hospital and into surgery. They took a huge blood clot out. I now have a sunk down hole and sciatica nerve damage. When my gall bladder surgery went bad thats was the proverbial straw that broke the camels back. I now have big full on fibro. I'm not looking forward to winter....ugh

October 12, 2016
A MyFibroTeam Member

I am so sorry to hear about your Mom ! even tho my mom does not know how to Love me as she does my brother and sister . she is 83 will be 84 in March !and right now she is dealing with liver cancer ,which i believe she will beat it .with GODS MERCY and GRACE !and by the stripes that were put upon OUR LORDS BODY for healing she will win ! BUT anyways i know she may not have much longer on this earth i am preparing myself when she does go to be with the LORD ! i do not know what i will do ! i use to work at a convalescent hospital and i would look at them sleep at times i now see my Mother as i did with them ! so again i am so sorry about your Mother i sounds like you guys were really close and had a lot of love for each other ! for i do not know how that feels ! and then my aunt has bone cancer and my sister has pre cancerous cells in her bowels and is waiting for a double lung transplant ! i mean my whole family could be gone one after another ! sorry i dont know why i am burdening you with this ! well sending you love peace ,joy and oh so many prayers along with GODS GRACE AND MERCY ! always michele

November 9, 2016 (edited)
A MyFibroTeam Member

I found out in 2006, but starting feeling the fatigue and aches way before that. I would say in my late 30's. I am now 62.

October 15, 2016
A MyFibroTeam Member

found out I had it in 1995 how even I had CFS/ME since 1977 No one knew what is was back then.

November 8, 2016 (edited)

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