@A MyFibroTeam Member I loved working. I loved having a reason to leave the house and I loved having money. The fibro was not that bad when I was working. I had my Dr's write notes so I could have a stool to sit down (I was a cashier). When I had a flare, it still wasn't that bad. As I started getting worse, the fatigue and the paresthesia in my feet were overwhelming. I didn't complain because I needed the job. They could tell something was wrong, though. They didn't know about the fibromyalgia. They saw my occasional limp and my slow gait. They became more aware of my "fogginess" because they started to put me under the microscope; watching me on the camera. They eventually fired me for something they made up, but the truth is that I started getting worse. I don't know how much longer I could've worked anyway. I started out doing okay but the fibro took me downhill quickly. I did apply for disability. I was denied twice and then I appealed. It's been almost 2 years now and all I'm waiting for is to go before a judge and hear his ruling. It was hard to work with fibro and I never felt the need to explain my health to anyone. I'm private and considered it none of their business. If you are still working I really don't know how you're doing it. If you feel the need to explain so they understand or maybe get a Dr note, it may help the boss realize how bad you are and how hard you're trying. You can tell them how it seriously drains your energy and causes your entire body to hurt. Tell them it's like the flu and mono at the same time. I hope you figure it out and I hope you apply for disability as soon as possible...especially if you feel that you will suffer more from continuing to work.
Good luck.
*hugs*
~Nancy~

Mentioned Users

A MyFibro...

I am on SSD because I can't work with FM, RA & degenerative disc disease. When my recertification came around, my PM dr refused to write a letter stating that I can't work. Saying he is in the business of getting people back to work not letting them sit around doing nothing! So, if I were to miraculously be cured of the incurable FM, in the meantime while treating me, I'm supposed to suport myself how? If Social Security recognizes this as a disability & is willing to help, who are you to say don't support her til she "gets well"! So far they are continuing. Thank God! It makes me too angry!

Oh, I truly appreciate hearing about how this has affected others, other than myself. It lets me know I'm not crazy. Anyway I'm in the same boat, I worked as a laboratory assistant and loved my job. However, I was missing a lot of work and that's that I had taken vacation and even medical leave hoping that I would return refreshed and ready to work again. I had already suspected that I had fibromyalgia since about 2010, my PCP sent me for multiple testing and nothing. I finally got diagnosed in 2014 and by 2016 I knew that I couldn't work anymore. I would drag myself out of the house in the morning to go to work, then get home only to crawl into bed. So I quit with the support of my husband, and applied for SSD. Even though it has been tough waiting on SSD and I sometimes feel that I'm going to have to push myself back to work. My husband doesn't feel that I can commit to a job again, just because you never know when you will have to miss work due to a flare up or even for how long.

Thank you everyone. I know all of this but everytime I get into trouble at work for most things that aren't what they seem and maybe some that are I worry over and over about it and it drags me down. My husband is supportive but the problem is I can't afford to quit and I know he wishes that we could afford that, so hopefully I can get ssi and it's enough to keep us afloat and that it doesn't take forever and a day.

are you applying for S S D or work S S I ! because if it is S S D they have 180 days to reply ,and they always well turn people down the first try ! but try for it again !