How has this affected your relationship?
My family FINALLY accepted my problem after over 20 yrs! They all know now that I hurt and need to rest all I can! I tell them all the time that I pray none of them EVER get it! I don go to bed and I'm constantly doing all I can go keep my house clean , bed made up, and laundry made! Might take awhile but I'm determined to stay as busy as I can be!! Don't get me wrong, I lie down when I need to!! And my pains are very severe! But something I heard from a friend today whose sister is I in a nursing home! She said when she would go in her sister's room she would be sitting on the toilet crying because she couldn't get up by herself, and no one would come help her!!! She said she wants to stay fit enough to not loose her ability to get up and down and able to still move about! She's about 85! That hit me hard! I thought I never exercise or get out and try to stay fit! If we sit or lie here, one day we will be lying in a nursing home not able to get off the toilet by ourselves! I've decided I'm going to do something, whether it's getting on the floor to stretch or walk around my house, outside! God help us all to try harder to help ourselves! Our Drs. Aren't really interested in us getting up and having a future!! Only we can do that!!! Let's go people!!!
I'm newly married, not even a year, and my husband told me if he knew I'd be like this..he wouldn't have married me. I'd say it effects my relationship very badly. I'm assuming he meant tired all the time and hurting. ...
I have the 17 in high toilet and the portable rails soi can get up myself. Like I said I do leg lifts in bed and I lift small 1&2 lb. weights for my arms ,but I do i t all in bed so I don't tear the rotary cuff in my arms.
It is hard for someone to ever completely understand who can't feel our pain. We can just hope they understand.