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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Reading, PA

This isn't a question but I wanted to know I'm not alone.
It's bad enough I can only shower once a week but it's exhausting. I'm embarrassed n ashamed. How can I get so tired from a bath. I had to sit there n build up the strength to get dressed.
This fibro crap really sucks. I'm so sick n tired of it.
I want my life back!!

September 19, 2016
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Answer Summary

Members opened up about the exhausting reality of bathing with fibromyalgia, with many sharing that showering feels like one of the most... Read more

Members opened up about the exhausting reality of bathing with fibromyalgia, with many sharing that showering feels like one of the most energy-draining activities they face and often requires significant rest afterward. Several members offered practical strategies including using baby wipes or disposable bath cloths for off days, installing a shower chair or grab bars, taking cooler showers to reduce fatigue, switching to 2-in-1 shampoo and body wash with lotion, and giving themselves grace by pacing activities and resting without guilt. A recurring theme was the deep sense of isolation and shame many feel about their limitations, met with powerful reassurance from the community that they are not alone, encouragement to keep moving gently to prevent muscle deconditioning, and reminders to reach out for mental health support when depression becomes overwhelming.

A MyFibroTeam Member

I have been in a fatigue state where showering and dressing feel like it requires more energy than I had. Thankfully I am no longer I that place with my fibro. It is an awful place to be and my heart goes out to those of you who there now.

As a person who has been living with fibro for over 25 years, please indulge me and allow me a moment on a soap box. Inactivity actually perpetuate the fatigue and pain. Without activity our muscles become deconditioned, and eventually even the most minimal tasks will become a burden to the muscles and will cause pain. Even if it takes all day, get in the shower. Through my job, I watched a number of people give into the pain and stopped moving around. Two needed up using electric scooters and could only take a few steps and the other 2 ended up with full time care givers because they had lost so much muscle control and could no longer do personal care tasks. So it is important to look beyond the pain and fatigue today and realize the choices you make can have long consequences. I have been where you are....I truly understand the pain, fatigue and frustration. Keep plodding through those every day tasks. It WILL get easier as your muscles get stronger and your fatigue will lessen.

September 20, 2016
A MyFibroTeam Member

Jes01102015,
I had to add this, you were very brave to pose that comment/info!! I don't think I ever would have. WAY TO GO GIRL!!!! And thank you for doing it!!

September 19, 2016 (edited)
A MyFibroTeam Member

This is my 6th year fibroversary there are times I wish I could just go to sleep and never wake up then I look around and see people worse off than me and I feel guilty then for feeling so useless and thinking I am bad off if ever a country would allow voluntary euthanasia for this disorder I think I would take it I will be 59 in January and feel of no use to anyone anymore life sucks everyday is full of pain and it is relentless I have no friends this is because I chose to let nobody in. My family have their own lives and have very little time for me and I am not a barrel of laughs to be around I manage the house, shopping and a part work from home job and I still drive but finding pleasure in life is few and far between gentle hugs to all life with fibro and chronic fatigue sucks*(((

September 19, 2016 (edited)
A MyFibroTeam Member

God can only hold your hand through the fire right now...But look ahead to the prize he offered. God's son said to his fellow person on the torture stake, Tomorrow you will be with me in paradise.
What ever your paradise is...keep that as your prize to keep living.
If you have kids, or family, and you can't keep living for you, live for them!
Hopefully, soon they will figure out a cure, or a huge bandaid to make it better.
And, we are all here, fellow #FibroFighters

September 21, 2016
A MyFibroTeam Member

I hate it too! I have to allot myself time to re-coop from the shower.
Advice? Take cool showers. The heat is what is draining you.
I take as cool as I can and do not get drained like I used too.

September 21, 2016

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