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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lupus

A MyFibroTeam Member asked a question 💭
Wichita, KS

Had anyone tested positive for lupus? I had one test last summer that was negative then one this past month that was positive. I go back in 12 weeks for more testing. Just wondering how common this is. Is lupus common among people with fibro?

September 10, 2016
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A MyFibroTeam Member

I was tested in Feb and it came back negative. So was referred to Rheumatology and told I have fibro

September 11, 2016
A MyFibroTeam Member

@A MyFibroTeam Member I got a diagnosis of Lupus in about 2006 and was placed on 2 medications for it. I was referred to a Rheumatologist and she looked at my labs and said you do not have Lupus and took me off of the meds. Then when I went to see my orthopedic doc for my knee injection he looked at my labs and said I was borderline Lupus. UGH....The same pcp that said I had Lupus, also told me I had a Collagen disorder and the pcp that I have now said that I don't. Never ending!!

September 11, 2016
A MyFibroTeam Member

I tested positive when I first got sick as my Ana blood test was high. After blood tests every 3 months for a year my Ana was back to normal so they changed the diagnosis to Fibro. I continue to have more symptoms of Lupus but because my rash is not on my face they say I don't have it. The 1st year I got sick I developed a rash on my chest that gets worse during flare upsups but according to the medical standards, I guess it doesn't count as lupus.

September 11, 2016
A MyFibroTeam Member

I tested positive for it and my ana and seds are always.off but they still say fibromyalgia

September 11, 2016
A MyFibroTeam Member

You have Lupus, no you don't. I'm 100% positive you have lupus. You're an idiot for thinking you have Lupus. That's the cycle I'm in. My ANA panel is always in that 99% range but followup testing rules it out. Honestly I just gave up worrying about it because I'm tired of the run around I get about it.

September 10, 2016

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