Answer Summary

Members connected over the deeply uncomfortable sensations of fibromyalgia fatigue, including overstimulation of the mouth and tongue, a... Read more

Members connected over the deeply uncomfortable sensations of fibromyalgia fatigue, including overstimulation of the mouth and tongue, a drunk-like feeling of being pushed forward, and the overwhelming need to shut down, with many expressing shared confusion about what causes these strange symptoms. Several members discussed the challenge of working full-time with fibromyalgia, with practical suggestions including applying for FMLA for job protection during flare-ups, pursuing disability retirement when employers' understanding runs out, and filing for Social Security disability, though one member noted they had tried without success. A recurring theme was the frustration and exhaustion of living with unpredictable, difficult-to-explain symptoms that force you to shut down and rest, often at inconvenient times, with the sentiment that fibromyalgia simply sucks.