the mask of invisible illness and fibromyalgia and fibromyalgia | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "the mask of invisible illness and fibromyalgia"

reset
Anyone Tried Topical For Breakthrough Pain.
A MyFibroTeam Member asked a question 💭

I am maxed out on cymbals and neurotic due to my kidney disease; but I have had terrible breakthrough pain.
My girlfriend..Who is newly diagnosed but has had chronic pain for years uses lidocaine patches for breakthrough pain. I asked my MD and he said was a really good idea..Now I have them too. It is helping a lot..Reduces the pain to make it bearable.

•
View reactions
A MyFibroTeam Member

Before being diagnosed for chronic migraines, FM & CGS, I lived on ICY HOT & ASPERCREME. It was a GODSEND. Still use it, sometimes instead of gabapentin if pains are mild. It was nothing unusual for… read more

Does Anyone Ever Feel Ashamed Of Your Condition And Limitations?
A MyFibroTeam Member asked a question 💭

Does anyone else ever feel ashamed that you can't function the way that you once did? I don't know if it is because it is so difficult for others to understand or if it's the reaction from a lot of people in the medical community. I just sometimes am very hard on myself for not being able to fight harder.

•
View reactions
A MyFibroTeam Member

Yes! All the time. I used to be a very determined and hard worker. As I got order, and the fibro pain and fatigue worsened, I was told to use a cane. I absolutely hate using it because I feel that… read more

Burning Cheeks/face And Head
A MyFibroTeam Member asked a question 💭

Does anyone get burning of the face that is actually visible? Everything I read is that Fibro is the ‘invisible illness’ but mine isn’t, I burn with pain and actually visually burn too, so confused, the medical profession just give no answers 😢

•
View reactions
A MyFibroTeam Member

Yes. I'm going through it now for the past few days . Face burns and lips too. Feel sunburned.

How To Find Friends On Here That I Already Know
A MyFibroTeam Member asked a question 💭

I want to add my spouse to my team and i know another person that lives also has this app and i can not fond them so i can add them. Any suggestion on how find them or so they can find me. Thanks

•
View reactions
A MyFibroTeam Member

Go to the three lines on the top right. Go to meet others . Then put you zip code. People near you will show up. Click on person add to your team! Hope that helps! Hugs

Is There A Summerville SC Local Support Group
A MyFibroTeam Member asked a question 💭

Or in the local area?

A MyFibroTeam Member

I would love to have a support group in the Charleston area. Please keep me posted if something gets started!

Is There A Particular Style Of Yoga That Has Helped Anyone Here?
A MyFibroTeam Member asked a question 💭

I need a stretching type class because I'm so bad at doing things to help my situation at home. My thigh muscles are much tighter than any others and it causes my knee caps to pull up. I have trouble with lounges and various other positions but when I stretch it helps.

•
View reactions
A MyFibroTeam Member

What is hot pod yoga

It Stopped My Headaches
A MyFibroTeam Member asked a question 💭

Iv had the daith piercing for nearly a year and my headaches/migraines have stopped completely but my fibro is still the same as before.. I don’t take any medication for my fibro as it was making me worse, no harm in trying the daith. What may work for some doesn’t for others..

•
View reactions
A MyFibroTeam Member

What is daith piercing????????

Is Anyone Using DHEA To Help Alleviate Symptoms?
A MyFibroTeam Member asked a question 💭

I read that DHEA can help lesson pain. Has anyone else tried this and if so is it working? I already take mega doses of Vit D, Vit B, Q10 and Magnesium and also wear a magnetic bracelet! Will try anything other than the usual fibro "meds" at this point.

•
View reactions
A MyFibroTeam Member

I have a few items to suggest, one is: Zyflamend, another is LDN, more necessarily later.... uber busy today... but Dr. Jacob Teitelbaum has some to recommend... see his FB for his 'Pain' Book in… read more

I'm Having Horrible Neck Pain With Severe Limited Range Of Motion. Any Suggestions For Relief?
A MyFibroTeam Member asked a question 💭

I began getting a sore neck about three weeks ago it has since become unbearable. I'm not currently on any fibro meds and am really struggling with this. The pain is now causing headaches and anxiety issues. It feels as though my neck is swollen. I have been under a ton of stress so I'm not surprised I'm flaring! It's difficult to turn my head! Has anyone else ever experienced this and what did you do to ease the symptoms?

•
View reactions
A MyFibroTeam Member

That’s awful! Absolutely unacceptable! I’ve been there and I’m glad you are no longer in that situation anymore. Should have had him thrown in jail. 😡

Anyone Live Near Raleigh,NC Who Has Received Social Security?
A MyFibroTeam Member asked a question 💭

I finally have a hearing date for June!! Anyone live near Raleigh who has been through the process? How did you fare? I'm using a lawyer from the advocator group.

•
View reactions
A MyFibroTeam Member

A good 'Tool' is a "Functional Capacity Report" via a Doc which details what you are NOT able to DO, RELIABLY (this can't hold a steady job)... contact me backchannel for assist mrst2222@… read more