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TINGLING SENSATION
A MyFibroTeam Member asked a question 💭

Has anyone experienced a weird tingling sensation all over their body? The best way to explain it is feeling like the chills but tingling instead. Is this a common feeling?

posted July 4, 2016
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A MyFibroTeam Member

Yes indeed. I get this a lot. Especially if I am not keeping really quiet and stress free. I think it is a nervous response. Fibromyalgia attacks nerves and muscles. Nervous system includes sensation /feeling and it also includes brain wgicj responds to stimulus that we see or hear. -- we say something gets on our nerves and makes us feel irritable. So when I am in a noisy commotion kind of settin, or if people are arguing, or like yesterday just the fact of being in a crowd at church, my body will start spasming like that. It feels like after you have been pushing a lawn mower and your fingers tingle. Only this is your whole body.
My simple answer is that it comes from stress. Which I have learned I can't tolerate as much as I used to.

posted July 4, 2016
A MyFibroTeam Member

No, it absolutely isn't in your head. Your doctor went to school to to learn about your disease, but you live with it every day. You are your own best advocate. Trust yourself and trust your instincts. A good doc listens and doesn't dismiss you, instead asks more questions and works with you. No one is perfect, including them. Trust yourself and what your body is saying. It most certainly is a symptom of fibro. My hubby did several nerve tests that came up negative and no one explained that was the problem. We had to learn for ourselves - we both have fibro.

posted July 5, 2016
A MyFibroTeam Member

@A MyFibroTeam Member
Too many typo mistakes - thanks to auto correct.
My brother has seizures and a good friend too. The symptoms you describe sound to me like seizure activity more than fibro, but I'm not a doctor.

posted July 8, 2016
A MyFibroTeam Member

@A MyFibroTeam Member
I am going to cry with you because I know how let down you feel when a doctor says something so bizarre. You trusted them. Looked up to them. Thought he knew what he was doing. Then suddenly you realize he is dead wrong about something. And wonder of there are other things he said that were not accurate. But you still kind of like him. You want his help. You want him to know. So you try to explain again. Or else you just go home and wonder if you'll ever go back. Then if you dont, you face a withdrawal from a relationship. And you wonder if it's just you.

But we know you are experiencing odd nerve and muscle pain that cannot be explained by someone who doesn't know. A good doctor should say he will research this further.

posted July 5, 2016
A MyFibroTeam Member

You are welcome! Don't forget, in all this mess, that your doc is supposed to be a part of the team that helps you. You have to work together. Besides, you pay them for their services and are not at their mercy no matter how you may feel sometimes
You can do it girl!

posted July 5, 2016

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