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A MyFibroTeam Member asked a question 💭
Southampton, UK

So been referred to see a rheumatology. Could i get some tips on what to take with me etc?, also what do they do. I be going to Southampton so if anyone is with Southampton general hospital please could you share you reviews x

June 28, 2016
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Answer Summary

Members shared essential tips for preparing for a first rheumatology appointment, with the most consistent advice being to bring a detailed... Read more

Members shared essential tips for preparing for a first rheumatology appointment, with the most consistent advice being to bring a detailed medication list, keep a pain diary or journal documenting symptoms and flare-ups, and clearly describe both worst-case days and how pain and exhaustion impact daily life. Several members emphasized the importance of educating yourself about your symptoms, writing down questions in advance so nothing is forgotten, and being prepared for a thorough examination that may include x-rays, scans, blood tests, and pressure point assessments depending on what your GP has already done. A recurring theme was the value of self-advocacy and detailed record-keeping, as these tools help doctors understand the full picture and lead to more accurate diagnoses and treatment plans.

A MyFibroTeam Member

Educate yourself a much as possible and see what symptoms you have that matches up. I was diagnosed 7 years ago and since joining this group I have learned more here than anywhere else. small things that people mention and I read and say hey that's me too. Like my cognitive function increase as the day goes on and really kicks in late at night. There are times when I will be walking and it feels like my leg goes limp. Recognize stress triggers. I kept having sever pain in my shoulder that radiated down my arm into my hand. I actually had carpal tunnel surgery because of this pain and the surgery and this pain did no good. The pain was actually worse than before. I was at my primary doc for med refill and mentioned to her and she looked at my shoulder and said you have a huge muscle spasm in your shoulder. She gave me a muscle relaxer and sent me to physical therapy. The therapist immediately put the pieces together and solved what for 3 years I was in terrible pain for was s specific muscle in my shoulder would tighten like a not. I learned I carried the stress of my life in my shoulders.I have been having marital problems due to the fibro and the effect it has had on me both physically and mentally. The stress from that act almost like a light switch to turn on the pain. Medication and proper exercises helps me control that specific pain which was the worst pain I have ever experienced.

June 28, 2016
A MyFibroTeam Member

Bring a list of medication that you take.

June 28, 2016
A MyFibroTeam Member

I went there before I was diagnosed, they took loads of x rays, scans, blood tests, examination on body and pressure point's,

June 28, 2016
A MyFibroTeam Member

Cymbalta really helped my legs not to hurt or be able to walk especially 1st thing in the morning and afternoon sitting to long. But I did gain weight on it.

June 30, 2016
A MyFibroTeam Member

Thank you just worried in case i get no where and im back to square one where they would say its down to my weight ;( i find my pain is legs, hands, feet,and arms more but i also get bad mirgranes normally when im stressed out it my legs or mirgranes ;(

June 29, 2016

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