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I have just read a story bout a young woman, who had M.E..and I dnt no what to make of it..because right at the end it mentioned something about the herpes virus again/ganglions,&the spinal cord that I have heard some of us talk...iam bit confused but its a true real life story&its very sad.you can read it on ( sofiaandme.org.uk).
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Members exchanged thoughts on a true story about a young woman with M.E. (myalgic encephalomyelitis) whose condition was tragically dismissed... Read more
Basically in this story, www.sofiaandme.org.uk..this young lady was being looked after my her mother, she was bedbound, in the end..she was taken away to mental hos, which she didnt want, they fought to get her bak hme,,the authorities, were saying it was all in here head basically&that her mother was, making it worse..cut along story short this once active young woman,, passed away,, it was only then that wth after her mother gave consent to research on some of her body,, they asked for the spine to be analysed,, that the medical professionals found the root cause of problem in her spine,&was the only ever, tme that on a death report it was able to say she passed due to M.E...its a true story&the people were of irish decent.Its very sad,, but also enlightening, to nerological/spine.sorry if this has upset anyone, it wasnt meant, it was to shed sme light onto things&information&to help awareness, which is why I love this site as i want to learn&grow&be able to fight for my health&to able to say yes/no to meds or other treatments they throw at us that we no isnt right..knowledge is power..We no our own body better than anyone..Much Love.:-)♡
Read the story Loz mentioned find all new information interesting. I too suffer from cold sores.
Thankyou,,@A MyFibroTeam Member.hugs.:-)
My phone went all to pot and sent half an answer so here's the rest....I had the trauma of 3 lumbar punctures. I also like her suffer from the herpes simplex virus and break out in cold sores every month which I have been on umpteen meds for but you can't get rid of this virus and I have also been treat several times for shingles!!!!!!! It certainly give me something to think about 😕
If FM is connected to viral infections, i.e., Herpes, Mono, and others then my homeopathic doctor recommended coconut oil and Frankincense Oil mixed together. I am not sure if I am supposed to take orally or rub on my skin lol I have been waiting to hear back from her. There is a doctor in Oklahoma that is using Alvacore ?sp and Celebrex together and has seen progress. It is my understanding the the International FM association did not concur with this research.
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