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Hi, I have wondered this many times, I know being in this condition with so many others, I'am not the first person to wonder, I know fibro does get worse. So my question is what is our future as things stand now? R we going to become bedridden? I know each person is different, each case is also different. Each person has a different doctor and a different medical plan. (Key word, different) I just wonder what happens next? I know we shouldn't worry about tomorrow, live for today, but if… read more
Answer Summary
Members shared deeply personal concerns about the progression of fibromyalgia and whether they might become bedridden, with the conversation... Read more
We need to take as much responsibility as we can for ourselves. The biggest thing that I notice is that we HAVE to stretch and exercise even if we don't want to. Our bodies will respond. I also have faith that new treatments will come along that will help and maybe cure someday.
By the time all of us are back in diapers again someone somewhere is going to come up with something to help us. I'm talking before all of us are about 90 years old. Now that they know this is a condition scientists are trying to figure out how it comes about and how this effects that blah blah they just need to move their butts along and need to have more funding so they can do more testing and maybe they will hit the jackpot sooner then all of us think. Fingers crossed we can dream right? But this is something that can actually happen look at all the things they have found cures for. We give them maybe five years and yes to us it feels like 30-50 years but hopefully in five years time they get somewhere that at least helps us be somewhat pain free at least from the fibomalgya pain so we can then tackle the other pain from other issues some of us may have as well or if fibomalgya is the only only issue then can finally live a bit!
Tomorrow comes but we never know what tomorrow may bring. It can be a new med or a cure. It can bring promising news it can not. I've learned we gotta take it day by day. And on a bad day hour by hour I have days were it's been minute by minute. But one day we will get there.
I've actually gotten much better pain wise since switching to Savella and Diclofenac. Hang in there, it's not supposed to be a debilitating disease. 💗
Well it's not like there will be a magic cure for FIBRO. It's not just one specific illness. I mean if they do find a ( cure) does that mean the pain, fatigue, memory loss, ibs, depression, weight gain, insomnia, RLS, and all the other issues we suffer from will just go away??? I mean, I have hopes of a day when I can be normal again.... But what are they actually looking for a cure for? Just frustrated. Sorry.
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