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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Pip

A MyFibroTeam Member asked a question 💭
Chippenham, UK

I'm thinking of applying for pip now I'm medicated etc is anything I need to no etc?

April 27, 2016
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Answer Summary

Members rallied around someone preparing for their PIP (Personal Independence Payment) medical assessment, with the overwhelming consensus... Read more

Members rallied around someone preparing for their PIP (Personal Independence Payment) medical assessment, with the overwhelming consensus being to seek help from Citizens Advice Bureau specialists who know how to properly word applications and can spend hours ensuring forms are completed correctly. Several members shared practical strategies including gathering supporting statements from family and medical professionals, requesting home visits instead of traveling to assessments, using resources like benefitsandwork.co.uk to understand the points system, and presenting yourself on your worst day during assessments while being monitored for consistency. A recurring theme was the difficulty of the PIP process and high rejection rates, but members encouraged persistence through appeals and emphasized that working part-time does not disqualify someone from receiving support.

A MyFibroTeam Member

Don't go wearing make up or your hair washed. Wear 'dowdy' clothes. A few creases won't go amiss either ( you struggle ironing clothes!!)
Have someone go with you to assist you physically and mentally ( anxiety/ panic and fog if you have mentioned them in your claim- don't forget to 'play'these up to the hilt) Do not attempt to use any stairs they have and ask for a lift. If they don't have one ( which has been known)ask for the assessment to be moved to a more suitable room or to be rearranged to somewhere more appropriate to your needs. ( you are within your rights)
Make sure you are helped out/ in of any vehicle you arrive in if near to buildings and supported in to building. Bring whatever walking aid you use if any and rely on it heavily. Do not open doors yourself if accompanied and really struggle if not.
You will be monitored in everything you do to try n stump you against what you have claimed in your form.

Make sure you stop often on your way along corridors hold on to walls etc wobble and get up and down off and into seats very slowly rely on your companion if there to help you.

Shaky hands/ wringing of hands. To indicate anxiety

Ask questions to be repeated frequently or say I'm sorry I don't understand I am suffering from Fibro Fog and it's difficult for me to process things at minute' .. Wander in your reply if necessary

If your not having a 'bad' day you go in there as if you are having one of your worst ( other than a bed day)

Hope some of these helps and good luck xxx

April 28, 2016
A MyFibroTeam Member

@A MyFibroTeam Member like I've said previously gat the CAB to help you. If you're close to your return date, phone them & ask for an extension, that's what I did & I got a 2 week extension.
It was because of getting an appointment to go to the CAB to fill the form in. The bloke I had was great, he also did all of the writing.
The good thing with CAB is that they're independent & as soon as I phoned them & told them what it's for, the appointment that they gave me was with an adviser that specialises in PIP. That person also knows how to word certain things.
Good luck with your application.
I've got my medical next week so I'll keep everyone posted with what's happening.

April 29, 2016
A MyFibroTeam Member

I highly recommend a website
www.benefitsandwork.co.uk

They walk you through each question on ESA DLA and PIP forms and tell you how to answer them to get as many points as possible.
They make you think of things that you now take for granted that you have had to adapt in everyday life that you would do differently if you were 'able bodied'. The things that you wouldn't imagine would actually get you more points.

They also have a members forum where you can ask how to answer somethings you aren't sure of specifically related to Fibro and any other conditions you have. There will be other members that have same medical conditions that will answer you with how they responded on forms.

They will also tell you what additional information you should ideally enclose to back up the form and what it in itself should contain

They instruct you on how to amend forms on final statements to legally protect you and not at their terms.

It is an annual fee of £16 but so totally worth it for the amount of information contained to make your claim successful and a lot are without having to go for medical or assessment

I have used them for all my benefits claims and been successful in them first time without medical, as has my daughter and at least a dozen other people I know or have recommended them to website.

Unfortunately most people only here about the site when they have been rejected but the site walks you through reconsiderations and appeals as well and have a great success rate again because the person finds out what they should have included but hadn't.

They also have a Facebook page you should checkout

As a side note .. Make sure you keep copies of forms and everything you return to them and ideally send recorded delivery

Hope this helps

April 27, 2016
A MyFibroTeam Member

I have recently had a work capability assessment and am going through an appeal. Someone on here mentioned a website called www.benefitsandwork.co.uk. you have to pay a yearly subscription but gives u lots of information.

April 27, 2016
A MyFibroTeam Member

I used to work for citizens advice thats how I know u can request a home visit, they might try and talk u into going in a taxi but refuse and they'll come to u x

May 2, 2016

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