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A MyFibroTeam Member asked a question 💭
Augusta, GA

For instance, I can be extremely tired but my body doesn't recognize it and that's when my pain level goes haywire but when I get a good couple days of rest all I wanna do is sleep and I can still be n pain!!

April 19, 2016
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Answer Summary

Members opened up about the conversation of how their bodies react to tiredness versus being well-rested, with nearly everyone agreeing that... Read more

Members opened up about the conversation of how their bodies react to tiredness versus being well-rested, with nearly everyone agreeing that sleep rarely feels restorative and exhaustion persists regardless of how many hours they rest. Several members shared practical observations, including noticing that extreme tiredness triggers full-body inflammation and widespread pain, that pushing through fatigue often leads to multi-day flares, and that recognizing subtle warning signs like feeling wired or ears ringing can help prevent worse crashes. A recurring theme was the frustrating cycle of never feeling truly rested, even with sleep aids like Ambien or melatonin, alongside strategies like pacing activities, taking short rest breaks, using muscle relaxers, and supplementing with B12 or natural sleep aids to manage the relentless fatigue.

A MyFibroTeam Member

Great question - I sleep when I take Ambien from 11 to 3 then wake up with pain. Even when I rest during the day I am always tired. I went to the store today to pick up produce and got home and felt like I had run a marathon. I can't sleep during the day because I know if I did I would never get to sleep at night and that is already a chore. So we are tired when we rest and tired when we don't - can't win this game.

April 20, 2016
A MyFibroTeam Member

What I noticed for myself is...if I do way to much I get wired..and keep going...but then I have a HUGE FLARE...So now when I feel myself getting wired..I know ( for me) its telling me I am exhausted..and stop.Its so hard to do because I feel wired.But since ( for me) I put this together..I do not have as many HUGE Flares.I have a twin brother..and we talk a lot on the phone..he always tells me you sound wired...what were you doing..cleaning? He tells me to go rest...so I don't go with the wiredness ..who would ever think if your wired your tired? OMG crazy..but for me its true..!!

April 20, 2016
A MyFibroTeam Member

Yes I can sleep for 2 days and still feel like I need more rest. I never feel like I have had good sleep

April 19, 2016
A MyFibroTeam Member

I sleep in spell don't know what and full eight hour sleep is I take ambien for insommia and I get a total of four hour and not back to back and then I'm so tired when I get up but I know I got at least nine hour work shift before I can lay down a gain

April 20, 2016
A MyFibroTeam Member

I am in constant pain and fatigue. I am the same about sleep...I have no trouble with falling asleep but if something wakes me I usually can not go back to sleep.

April 20, 2016

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