I'm Having Trouble Finding A Doctor That Understands My Symptoms Versus The "protocol" Symptoms. Does Anyone Listen?? | MyFibroTeam

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I'm Having Trouble Finding A Doctor That Understands My Symptoms Versus The "protocol" Symptoms. Does Anyone Listen??
A MyFibroTeam Member asked a question 💭
posted April 11, 2016
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A MyFibroTeam Member

I hear you, although I think that stimulating medications may worsen Fibro because they affect your nervous system. Technically we shouldn't even drink coffee but I rely on it for a boss it in the morning and afternoon. You don't have wide spread pain? Wow that's awesome, because that is half the battle. The other one of course is fatigue. I think the more we go back to the Dr. the more they think we are just anxious. Of course we're anxious, our bodies are malfunctioning!!!

posted April 12, 2016
A MyFibroTeam Member

Amen to all the above. I go to a female doctor in a clinic of six or so docs and all acted like I was lying about my pain. There was a male doctor in the clinic who actually diagnosed me with fibro there who eventually was so rude I just tried the female doctor. Ended up her mother has fibro and she has always treated me with respect has watched me cry many tears due to pain but never once made me feel less than or crazy. She said she had watched her mother go thru this and totally gets it but doesn't see a solution just tools that may help improve symptoms or at least keep the pain at bay.

posted April 13, 2016
A MyFibroTeam Member

Fibromyalgia now has its own medical codes which helps doctors. I found a good doctor who works with me and meds. I had one who looked at me after 6 months and said they really did not believe in Fibromyalgia???

posted April 12, 2016
A MyFibroTeam Member

I had a doctor, a few years ago, who said "of course you are depressed, but which came first, the depression or the fibro and does it matter?". She was willing to try to treat both. Now that I'm older, they don't want to give me anything that might have worked then.... so meditation, yoga when I could still do it and pacing my day got me through to a point where I am _almost_ good with life. Depression is a black dog tho, a big black dog

posted April 12, 2016
A MyFibroTeam Member

My primary never believed in Fibro he referred me to a Rheumotologist for possible arthritis after a year he finally put down a diagnosis of Fibro, Chronic Pain....its such a long and hard journey..We are strong because most people would not be able to handle everything we go through

posted April 13, 2016

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