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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hemiplegic Migraine Headaches

A MyFibroTeam Member asked a question 💭
Dayton, OH

I was hospitalized a month or so ago do to "stroke like symptoms". I had all signs of a stroke, just no signs of a stroke in all the test they ran. They diagnosed me with Hemiplegic Migraine Headaches. My question is, has anyone here been diagnosed with this, and if so how do you help with the headaches when they are intense and you've had it for a week now?

April 11, 2016
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A MyFibroTeam Member

I was diagnosed with chronic migraines, never heard that other name before. I was prescribed Rizatriptan and they have helped me so much with my migraines. Lavender oil is good also i rub it across my forhead and near my nose. I found it to relax me. Hope this helps.

April 11, 2016
A MyFibroTeam Member

Yes I truly understand I have been diagnosed too , very similarly. I have also just been diagnosed with occipital neuralgia…. Very painful 🤕I take high dose of gabapentin, duloxatine, bur patches . Now they are looking at adding another med for occipital. But since my meds I have not had one .
I don’t know about you but they are very frightening type of migraine nobody would know unless they have experienced it . It was also scary for my family xxx
Lots of love to you

June 27, 2023
A MyFibroTeam Member

This was the only relief I have found. I was told the try having my Daiths pierced. The last migraine I had, I was released from the hospital after a weeks worth of every test they could think of & with no help or relief. I was begging for them to just cut my head off. Worst one ever, they had to strap me down & keep me knocked out.
So I went & had my Daiths pierced. As soon as the guy pierced the right ear the pain started to fade on the right side of my head. It was incredible. I started rushing him to do the left side. Lol......he was trying his best to hurry & get just the right pressure point. Soon as he got the left one done, pain faded away. I can say I have never been so elated in my life, ever. I have not had a migraine since. Knock on wood......lol. Sure a sinus infection headache, or eyes tried headache. But NEVER a migraine. I thank God & Structure @ Cherry Street Ink in Macon, GA for the wonderful relief.
Hope this helps someone.

March 17, 2022
A MyFibroTeam Member

I was diagnosed with Aura Migraines. I just had Migraine cocktail because I had Migraines for over a week everyday. None of the medications worked that I took. My neurologist is getting ready to give me botox.

August 1, 2023
A MyFibroTeam Member

It worried me when my Mom diagnosed with hemiplegic migraines. Strokes run in the family. I was always afraid she would have a stroke and I wouldn't catch it in time.

June 29, 2023

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