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Was only diagnosed a few weeks ago and I'm really not coping very well! Am I just going through the motions and will start feel better about things or is this it?

March 29, 2016
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Answer Summary

Members opened up about coping with a fibromyalgia diagnosis, with many describing an initial period of denial, anger, and grief over losing... Read more

Members opened up about coping with a fibromyalgia diagnosis, with many describing an initial period of denial, anger, and grief over losing their former active lives before gradually learning to accept their new reality and adapt their daily routines. Several members shared practical strategies that have helped them manage, including pacing activities throughout the day, cleaning one room at a time instead of the whole house, cooking meals when energy is highest, taking regular breaks to prevent flare-ups, and building a toolkit of supplements like magnesium, vitamin D3, B12, and Epsom salt baths. A recurring theme was the importance of telling family and friends about the diagnosis so they can provide support and understanding, choosing to find laughter and beauty each day despite the pain, and remembering that while fibromyalgia makes life harder, it is not fatal and does not have to define your entire existence.

A MyFibroTeam Member

Another great book is" fibromyalgia for dummies". My Dr recommended it to me. It helped me so much to learn about fibro and how to get my family and friends involved. It also explains about disability and how to talk to your Dr.

March 29, 2016
A MyFibroTeam Member

What really helps me is I always remember that I could have something that could kill me so I am indeed fortunate. I invested in the book "Fibromyalgia & Chronic Myofascial Pain Syndrome" a survival manual written by Devin Starlanyl M.D. and Mary Ellen Copeland M.S. M.A. Before I had this book I was constantly in the Dr. Office trying to find answers to my symptoms. I now consult the book firstly and then the Dr. I hope this helps a little. It is not an easy disease and I think we should all get medals.

March 29, 2016
A MyFibroTeam Member

@A MyFibroTeam Member unfortunately we all deal with the diagnosis differently. Usually my emotional imbalances are bad when I have a flare up because of the pain but also I can't do certain things. When your having good days your mood will be different just make sure you don't over do it on your good days. You can do things but pace yourself. I hope that helps you.

March 29, 2016
A MyFibroTeam Member

Thank you @A MyFibroTeam Member, that's really helpful to know - we have a really good health food shop 10 minutes away so will pop in and see them😊 Xx

March 30, 2016
A MyFibroTeam Member

Thank you so much for all your words of wisdom - I think your all doing a great job of coping on a daily basis like you do😊 I hope it doesn't take long for handling like you and just accepting it for what it is and making relevant changes! I think I need to process what it all means before I overwhelm my family friends but do understand I need to do it so I can get through with love and support not alone like I'm trying to do at the moment!

Gentle Hugs to you all☺️

March 30, 2016

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