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Interstitial Cystitis
A MyFibroTeam Member asked a question 💭

I learned today that I probably have IC. More tests on Monday. Can someone fill me about the test and possible treatments?

posted March 21, 2016
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A MyFibroTeam Member

Good afternoon ladies , as I was reading this tread , a spinning red light went off in my head ... Ding , ding , ding ... We have a winner here ! I too experience that painful sensation after urination , or I feel like I have to urinate , shuffle my way to the potty in a not so fashionable way only to find out , its a false alarm .. Gahhh!!! Also, little bit of TMI here , small children please go watch TV for a minute , .... After sexual intercourse, I get a burning sensation , same sensation after urinating only on the cervical level , it can last for minutes to hours . Truly the most terrible feeling especially when the bladder decides to join the party . So, my question is ... Does anyone else experience this ? Its ok for the children to come back now 😯. I have to catheterize myself from time to time due to a very lazy bladder and damage due to the nerve that tell my bladder , Hey .. Its time to empty ... I'm going to bust any minute here !! The nerve was damaged during a lower back surgery and further damage was done partly by my own body raging its own war , and partly during my hysterectomy . Time for me to get this day started correctly ! I tried a while ago and wound
up falling to my .. Yup you got it .. My face . My glasses survived so were all good,.

Have a great day ladies 😊

posted March 22, 2016
A MyFibroTeam Member

I'll have to pay attention to the abdominal pain but when I go to bed I get up what feels like a thousand times ...but I have times that I get the urge.. I get up to go and I leak..sorry for the TMI but without being able to control it ugh . I've never heard of IC but ty for the info I'm learning what to look for. TY

posted March 24, 2016
A MyFibroTeam Member

@A MyFibroTeam Member, yes , please let me know how that goes .

posted March 22, 2016
A MyFibroTeam Member

On fb karen carter Upton. Email kscarter121@gmail.

posted March 22, 2016
A MyFibroTeam Member

If you go to the Mayo clinic site, they have a good description of what it is, what tests are done and how it is treated. I had two hydro distentions done. The second was followed by DMSO Coctails inserted into bladder once a month. Worked well for me.

posted March 21, 2016

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