Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Manchester, CT

What is a "fibro knot"?

March 7, 2016
 · 
Reactions

Answer Summary

Members shared their experiences with fibromyalgia knots, describing them as painful lumps under the skin often interchangeable with trigger... Read more

Members shared their experiences with fibromyalgia knots, describing them as painful lumps under the skin often interchangeable with trigger points, commonly appearing in arms, lower back, and buttocks. Several members found relief through specialized massage techniques that work along connected muscles rather than directly on the knot, stretching, light weight lifting, water aerobics, and detoxifying baths using combinations of Epsom salt, white vinegar, baking soda, and hydrogen peroxide. A recurring theme was the challenge of finding what works individually, with some members experiencing post-exertional malaise that makes traditional exercise difficult, while others also described painful muscle spasms and jerking in hands, arms, and legs as related symptoms.

A MyFibroTeam Member

@A MyFibroTeam Member BethanyWilson's link is spot on. They are like lumps under the skin and when pressed on, cause pain. I know I used to be able to have them massaged, and when that was done, the lump would 'break up'...at this point, they no longer break up and I haven't been able to get a massage in a long time because of the pain. From what I hear, massages can help some people. I believe the term is interchangeable with 'trigger points'.

March 7, 2016
A MyFibroTeam Member

I feel like I get a fibro knot on my left side of my butt, when my pain starts to get real bad. A literal pain in the a## lol. (Really at the time nothing to laugh at, because it causes me the most pain). It eventually works it's way out. Walking a bit helps it.

March 7, 2016 (edited)
A MyFibroTeam Member

http://www.mdjunction.com/forums/fibromyalgia-d...

March 7, 2016
A MyFibroTeam Member

OMG!!! I totally get jerks and spasms in my hands!!! I have asked all of my Drs. what it is, and none of them gave me a definitive answer. I'm so glad to hear that it's another symptom that someone else has besides me!! Hugs to you and thanks!!!!

March 27, 2016
A MyFibroTeam Member

I get those too in my lower back on my buttock it gets so bad I can barely walk I shuffle more than anything. I stretch out I stretch my leg I walk but it takes quite a bit to work it out. and you are right its a literal pain in the toucus.

March 8, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Mobile, AL

A MyFibroTeam Member asked a question 💭
Middleburg, FL

A MyFibroTeam Member asked a question 💭

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In