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March 4, 2016
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Answer Summary

Members widely validated the experience of severe joint pain with fibromyalgia, with many describing knees that pop, crack, and ache alongside... Read more

Members widely validated the experience of severe joint pain with fibromyalgia, with many describing knees that pop, crack, and ache alongside pain that travels throughout the body affecting hips, hands, wrists, and feet. Several members shared treatments that have brought relief, including cortisone injections every few months, gel injections like Synvisc-One, physical therapy to strengthen supporting muscles, compression stockings, TENS machines, topical creams like Sombra and Voltaren, and heating pads, though many cautioned about the limits of long-term steroid use. A recurring theme was the importance of seeing a rheumatologist to rule out conditions like rheumatoid arthritis or lupus that require early treatment, while acknowledging the frustrating reality that fibromyalgia often worsens over time and finding the right combination of therapies requires patience and self-advocacy.

A MyFibroTeam Member

I have been seeing a rheumatologist for about 4 years and I can honestly say that I have only gotten worse over the years. Just more of this to look forward to. along with the other illnesses I have I could not even get out of bed all weekend. I just rested and slept. But I still feel just as bad. nothing seems to help. especially since there are several things working against me

March 8, 2016
A MyFibroTeam Member

I also have a severe case of fibromyalgia, I've had fibromyalgia for over 16 years now and I'm sorry to say but it gets worse over the years x it sounds silly but even my finger nails hurt some days x

March 5, 2016
A MyFibroTeam Member

All my joints pop and hurt real bad, I have full body inflammation caused by a yet to be known disease. MRI showed inflammation in every joint growing rapidly, most likely AS like my brother. Real bad shit coming my way....

March 5, 2016
A MyFibroTeam Member

@A MyFibroTeam Member, I know all about the "Snap! Crackle! Pop!" And PAIN!
Yesterday, I finally received a prescription of 500Mg. *Nabumetone (generic for *Relafen. The pain from my shoulders and neck have decreased dramatically! Still some pain. But manageable.

@A MyFibroTeam Member, Not long ago, I saw my "hand doctor." Mentioned to him how Medical Science should by now have a liquid that could be shot into the joints to add in "Artificial Cortisone." My interpretation. My doctor said they are NOW working on something like this. It's a lubricant that helps mobility of the bones. Right now, it's being experimented with in *knees, only! You may want to ask about this.

@A MyFibroTeam Member and everyone, PLEASE be careful with the Cortisone shots! I used to use in between joints of my left thumb--only at a certain length of time apart. NOW, I have NO Cortisone between the lower bones of my left thumb. And I still have pain a lot of times. This is from my personal experience.

Okay. For all, Please go to Amazon.com and order a jar of *Sombra Analgesic cream gel. In "Heat Therapy" or "Cool Therapy." Use a disposable glove to apply-or have someone else apply. I use at bedtime, wearing a T-shirt over application before putting on PJ top. It would be almost impossible to get any sleep otherwise.

*Bed, Bath & Beyond has "lotion rollers." A bee hive looking style with rollers on the outside. Unscrew the lid to apply *Sombra (with a spoon) inside compartments. Afterwards, tighten lid back on. There is a long handle to reach in hard-to-get places. When finished using, place clear cover over the roller beads.

I hope this information helps everyone. Have a Blessed, Pain FREE weekend. Agape.

March 4, 2016
A MyFibroTeam Member

Hi, Teresa!
Yep, got it, too.
Ask your doc if Hyalgan Injections can help you.
VOLTAREN RX in both oral and topical are good for joint relief.
Our "pops" are due to tendons rolling over our bones. My trusty Large heating pad rests on my knees, when I rest.
Teresa, I wish you the best in health and happiness. Keep the faith!
LET

March 4, 2016

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